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Anyone else stuck in bed or just want to vent?

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Lyme Disease
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Posted 5/5/2014 2:25 PM (GMT 0)
Tell me about your struggle with acceptance. I'm struggling with wanting to believe I can get a lot better but also wanting to not be in denial of what my life is. I unfortunately have been in bed most of the time for maybe 8 months and half of the time for a couple years prior. I don't leave my house other than to go to the doctor. My friends parents drove me three hours to the doctor and I didn't think I was going to make it without turning around and coming home. I'd love to just go somewhere social or even to a store. But I'm so uncomfortable it's hard.
I do feel like if I can manage to afford all the treatments I need that I will be better someday. Just have to keep trying.

Please vent, what is your experience?
Posted 5/5/2014 9:34 PM (GMT 0)
Some days im stuck in bed but luckily not today but I still feel crappy. Its just such a crappy illness that unfortunately is not given enough attention!

I try to stay away from all the depressing Lyme blogs because I want to stay positive and use good thoughts to help myself heal. But I found one that is like Jenna's Lyme Blog or something like that. Basically she got lyme and was stuck in bed for like 7 years or something like that. She finally got prescribed high dose penicillin after trying everything else which failed and had a breakthrough recovery. I always think about that when trying to heal. I still think there may be something that can help everyone on here but the trick is to find it. Unfortunately its all so individual as to what our body responds to.

hang in there and stay positive, I know its hard!
Posted 5/6/2014 1:46 AM (GMT 0)
Hope springs eternal!

My problem is, that I have trouble going to bed when I need to. I stay out of bed as long as I possibly can, until I'm half dead.

Acceptance vs. denial are big issues for this illness. You need to accept the fact that your sick, but keep hoping and making plans for getting better.

Remember, you are not your illness. You have an illness, but you are not "sick," so to speak. The original "you" is still in there.

Go sit in the sun for awhile; that might help!

Margaret
Posted 5/6/2014 2:59 PM (GMT 0)
Louise, that's an awesome story. Thank you. I will remember that too now.
Margaret, you are so right on. We need hope but acceptance but we still need more hope! Thank you.
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