From the Beginning - long story

I have given bits and pieces of my story...but I wanted to give all the information and maybe the veterans (or anybody, really) can give me their opinion on whether it sounds like Lyme...or ?

April, 2013 - working on computer - not taking breaks, sore , tingly left shoulder blade develops through out the week of work. On weekend night I wake up in excruciating pain - neck, shoulder blade, and my left arm is limp.
Diagnosis - pinched nerve - my doc feels nerve is pinched in the neck, my chiro thinks it's brachial plexus compression. Over the next 6-8 weeks I lost 13 lbs.
Do almost nothing for next4 months. It slowly gets better - pain decreases and arm is good,but weak. Have a numb pointer finger.
Go back to part time work...but am having crazy hotflashes and bouts of crying, anxiety, depression. Doctor encourages me to go on female hormone replacement, which I do. After one week, i get the vibrations/buzzing in my upper body, and now the pain is increasing in my back. Doc says take more of the hormone, which I do....doesn't help. I assume it's from the hormone....so I stop completely taking it...but the vibrations/pain doesn't stop. It's now October.
End of October i wake up one morning and have joint pain - wrists, knees, ankles...along with my back/shouder blade pain. (and vibrations continue)...
November/December - seems like my Periph ns is on overdrive...random pains all over my body alond with all the other stuff.
Have tried physio to rehab twice, unsuccessful.
January - my arm starts to hurt real bad, and has periods of time when it is very hot compared to the rest of my body. I go to Chinese Medicine practitioners - doesn't help.
My husband starts having to wear earplugs as I am making awful choking sounds when sleeping (which also wake me) - He says it sounds like I've got phlegm in the bottom of my throat. Doc says get a sleep test - I do and I have sleep apnea. I also have been feeling like there's a lump in my throat, trouble swallowing sometimes. This started way back in may. I try the CPAP for 3 weeks - doesn't help - I still wake up every couple of hours...I tell Doc I need to know why I have sudden sleep apnea - she orders a barium swallow xray - shows nothing. Swallowing fine (at that time anyway).
April - I start having balance issues - not real bad, no one else notices...but I do.
symptoms today: left arm sore, weak, stiff, left hand sore with really bad flares; back pain, back cracks and creaks, shoulder blade pain comes and goes on left side, tail bone pain, can get to sleep, but wake up every two hours in a panic. Random, migrating muscle and joint pains - never know what I'm going to get when i wake up. The back/arm pain - is nerve pain. Also get vibrations daily - anywhere from 4 hours to all day. Also get chills/adrenaline rushes.
Have no motivation/drive to do anything - everything is an effort - you should see my house - (actually you shouldn't lol) - but I don't feel sleepy tired.
So - quite a stew of symptoms, huh? Anyone know what else it could be if not Lyme disease?
I may have forgotten some of the symptoms...

Sorry to hear your going through this. Have you had blood work done? a lymes test?

Hey there,

I know I responded before but we have the same timeline except for the throat thing. The only thing I get is waking up with a feeling like my throat closed and I gasp for air and cough some. Then I drink water and wait for my anxiety to calm down. But it's not all the time. Once in a while.

Have you noticed any heat/alcohol sensitivities? These are huge for me. Any palpitations? Ear issues? Stabbing sensations? Reading problems? Eye sight issues?

I hope you get a clear answer tomorrow!

Very interesting. I have read some people have cold sensitivity instead of heat sensitivity. I literally feel like I am dying in the heat. So I stay indoors ;). I'm curious how you would react to alcohol. That seems to be a biggie for folks here. I don't touch the stuff anymore.

I totally hear you on embracing a diagnosis you relate to! You just want to know for certain what the heck is going on. At least you could fight it!

I'm sure you're anxious about your results. I hope it's something you can work with.

-It's that wonderful time at night that I can not sleep. Oh Joy!!!-

Yeah, that's the other side that I've heard. Feeling cold when it isn't.

When I drink, I get super sick. I get very exaggerated symptoms. I feel drunk from a couple of sips and the next day my joints are killing me. Also get air hunger the next day. So not worth it!

Well, it's good that you at least have a plan B set in place. Good thinking!