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continued rifampin questioning

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Posted 5/13/2014 6:37 PM (GMT 0)
I am not sure there is anything more anyone can say about this to me and I am basically reposting the same question as before-I have been trying to psyche myself up for two days to start the rifampin. But I keep reading stories of it bringing out massive herxes in people and I am scared to start it!

I don't know if I have bartonella or not. If I have it it would be worth it to go through the rifampin treatment and herxes. But does everyone who has lyme and coinfections have bartonella?

I am feeling significantly better than I was before treatment a month ago. My only symptom is tinnitus. I am less tired, less anxious and much happier than I have felt in a while. I don't feel 100% better but I feel significantly better.

I am scared to start rifampin.

I would like to know more clearly if I have bartonella before I start it. HOw can I determine this?

My next ppmd appointment is in 16 days-- perhaps I should just wait until then to fully talk to the doctor aobut it and make sure it is necessary?

Do all people who get lyme also get bartonella so should I assume I have it? Or do only some have it?

Posted 5/13/2014 7:04 PM (GMT 0)
Best to start 1/2 dose for one week, then go full for a week, and see your LLMD with a progress report (good or bad). Diagnosing Bart is difficult, and you can't tell how bad you have it until you start treatment. Most of us all have Lyme, Bart and Babs, so most LLMDs will treat all 3 regardless of test results.
Posted 5/13/2014 7:34 PM (GMT 0)
thanks for the info. sigh- I am frightened that it will bring out a lot of symptoms I am not having right now. I know that is worth it to get rid of it but it makes me hesitant to start. HE only perscribed 300mg once a day- is that a full or half dose?

I guess it is true that I could progress better if I start it now and asses at the next appointment. I just feel nervous about what will happen to me when I start it. If I didn't have significant bartonella symtpoms before, will I have them now? I have to think of the future and this is something to do now so to feel better later.

Posted 5/13/2014 7:45 PM (GMT 0)
I just took a rifampin.Adding new strong things is somewhat uneasy. But at the same time, a lot of it can be in how I look at it. The best and only way I can look at this next step is to say- I am glad I have a doctor who understand that there are different strains of bacteria that need to be treated with different antibiotics, and so it is a good thing I have this solid protocol so I can really heal and move back to a better place. Since I am going for this whole treatment I may as well do it fully and get to the best place I can.
Posted 5/13/2014 8:02 PM (GMT 0)
I took the same dose, but at 2x/day. He is starting you at a low dose. Most folks tolerate Rif very well. I trust you will do OK. Just don't get hung up on the color of your pee. It will return to normal when you stop or even after a few weeks.

If you do herx, try some Alka-Seltza Gold. It works wonders.
Posted 5/13/2014 8:12 PM (GMT 0)
what is alka seltzer gold and what does it do? any other suggestions? thanks
Posted 5/13/2014 8:22 PM (GMT 0)
Alka Seltzer gold is the old drop-drop fiz-fiz tablets that been around forever. It helps with detox. Maybe its from the alkalizing properties and the high Vit C content. The "Gold" version I think is just without asprin (someone please correct me). CVS carries it and its pretty cheap.
Posted 5/13/2014 8:36 PM (GMT 0)
interesting-- is it something good to add to my detox program and if so how often, how regularly?

right now for detox  am only doing lots of water ( need to get some lemons), baths, vitamin b and liposomal gluthione

Posted 5/13/2014 8:49 PM (GMT 0)
No, don't use it all the time, just for extreme situations. I couldn't believe how well it worked the first time I tried it. Your experience may vary.
Posted 5/13/2014 9:15 PM (GMT 0)
thank you
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