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I think my son has Lyme too

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Lyme Disease
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Posted 5/21/2014 1:08 AM (GMT 0)
I took my children in today to see my LLMD. My son's BP was 90/60 and temp was 98. The DR said he sees low numbers a lot in Lyme patients.

We took a tick off my boy a couple years ago. We never saw a rash. Since then, I had to enroll him in speech therapy. He's getting better. He has a VERY difficult time remembering things. I still have to remind him of his age sometimes. He is bright and does well in class; just has the hardest time remembering. He also asked me one day, "mom, do you ever feel ants on your fingers but look down and there are none there?".


We sent off blood to LapCorp. We'll see what happens and take it from there. I am so scared about this. I feel terrible that I never connected all these warning signs. Darn this medical world for not educating people. Ticks are everywhere!!! And you can have Lyme without a rash!!!
mad
Posted 5/21/2014 1:16 AM (GMT 0)
I'm so sorry, poor little man! It's awful I know, I also have children with lyme. Only one has started treatment yet. It will be ok! How old is he?
Posted 5/21/2014 1:26 AM (GMT 0)
I remember reading your post when you found out :( I am sorry your children have it. But I am thankful you caught it and know the source of their sickness. What treatment plan is the one on? ABX or natural? I ask b/c my LLMD said he has not treated children before. How old are yours?


My little guy will be 8 in November. He was bit 5 yrs ago. (I guess children are much stronger than adults) He missed school 2 weeks ago b/c he said his legs were weak. He almost crawled to his bed that night. That's when I said "something is seriously wrong". And I made the call.

I know my boy is strong and he will bounce back. If this is Lyme, I'm going to be one pissed off mom. I'm sure you understand. The gov. has been telling it's citizens that we have to look for a rash. WTH?!

Ok... calm again. I will post when I get his results.
Posted 5/21/2014 2:38 AM (GMT 0)
I was around 9 when I came down with symptoms. I went my whole life being told I had panic attacks, which I did, but I had lyme arthritis as a child... Wasn't diagnosed until my thirties...

My son just turned 12 on May 16th, he's on 250mg of ceftin twice a day and this week we add minocycline. He was on AL complex for over a month before beginning antibiotics. He's on 300mg of cur cumin a day for inflammation, fish oil, three different probiotics, s boulardi (good yeast), R lipoic acid and many others.....

Post Edited (Maine76) : 5/20/2014 10:12:27 PM (GMT-6)

Posted 5/21/2014 2:42 AM (GMT 0)
Oh Leilex - sorry to hear - you have a lot on your plate to deal with.

It's hard when our babies aren't well...we just want them to be healthy and happy!!
Posted 5/21/2014 3:14 AM (GMT 0)
Maine, thanks for the info. I will just play the waiting game for now. But I will look into the AL complex.

Girlie, I know. I just want the best for them. And this is not it... but I know there is hope and faith. And I've got a bunch of that. so that's what I'll lean on.
Posted 5/21/2014 4:13 AM (GMT 0)
Let me know if you need any info, there are several other very knowledgable moms on here as well.
Posted 5/21/2014 5:40 AM (GMT 0)
sorry that it might be lyme for your son, but don't lose heart!

I've read and heard again, and again that children can recover fully and often faster than adults.
My son (4) has lyme. Don't know when he got bit; he never had a rash either. maybe it was the end of the summer at a family picnic in a deer ridden state park. I don't know.
He's doing so well though, has been on abx now for about 15 weeks. And, he started getting better right off the bat, with more improvements all the time.

I totally understand you're frustration with medical community. I don't know what it will take for dr.s everywhere to finally be lyme literate, but it desperately needs to happen.

I hope that you all can figure out if it is lyme and that treatment can help him effectively and quickly.
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