struggling and doubting

I am struggling with this so much. I called my doctor this moring but have not heard back yet. I am struggling with how many antibiotics I am taking and fearful that I am just making things worse. There are so many confusing messages. Some people say antibiotics are the best thing for lyme some poeple say they just toxify the body and don't help.

so sad and confused.

I am totally doubting my doctor right now. HE is feeling inexcessible to me. perhaps when I talk to him again I can get more help but I am still waiting.

seems like a lot of poeple got well on things like the hansa center? I put a call into them. I just want someone to tell me what to do and I do it. I am too tired to tr to research every detail myslef and figure it out.

Some people say I have to be totally gluten and sugar free. Others say go off the antibiotics and go herbal but I don't know which herbal. Others say jsut do the antibiotics and give it time.

I am so confused and I just want to do the right thing already.

Should I go to the hansa center?

stop the antibiotics?

keep going with the antibiotics and get better over time?

can someone tell me how to get better? I dont want to waste any more time being sicker longer than I have to. I want my health back so much. I will do whatever I have to to get it- I just don't know what that is.

Those of you who have gotten well- can you tell me what to do? In simple terms?

There is no clear cut do this or do that treatment when it comes to Lyme. Unfortunately at the end of the day it's upto you to figure it out and your Doctor could help be your guide , but it's upto you.

Lyme is very frustrating illness to get better from and it takes time. You're not the only one feeling frustrated. I keep treating and when I reduce my abx all the symptoms come back. But I feel I'm making progress. It's a marathon not a sprint. That's what lots of people with Lyme tell me.

I hope you get the answers you need!

Just remember that this illness is very different for everyone and some tolerate abx and some don't. Same with herbals. It's a lesson in patience.

Thanks. I already have a good diet- I eat organic whole foods, and since starting treatment I have cut way down on sugar. When I eat bread or wheat it is usually organic. All my meat and veggies and fruit and dairy are also organic and have been for years. So it is really just the gluten free thing I am wary and skeptical of.

I would make sure you express to your doctor your worries about how you feel with abx and you need help with this.

You sound like your unsure of whether feeling worse in abx is ok and should you push through.

Been there !! People told me keep pushing and it will get better.
It never did

There is a herx.
And then there are those herxing due to toxicity load being to high and your stay in herx feeling mode and never feel better.

I would ask your doctor to help you evaluate your status in this subject and how to know and what to do.
They are integrative and should be able to help you so you feel confident and not scared and confused.

There are methods to try to figure this out and no doctor should keep a person on loads of abx if they are complaining of feeling just worse all the time consistently. Herxes should be able to be resolved or cleared. If your not its too much. They can out you on pulsing schedules or take a break or various ways to help you learn to clear herxes or even just detox and clear your toxins and restart.

Some people can't tolerate abx or killing agents because they start out too toxic to start with.

Doctors should be evaluating this first in my opinion but at very least monitoring reactions closely as they treat to not over burden a toxic body and also should be guiding you as to how to detox as fast or faster than the killing is adding toxins.

All the diet and lifestyle things are exactly for that. So your body has least burden possible to fight off toxins created just by killing the Lyme infections.

Some have it easier than others and are at different stages and you can't have a one size fits all.

But detox should be part of what they help you figure out

You will feel so much more confident once you feel you have a handle on it as you will control how your herxes go and how you feel and how fast they clear etc by knowing the balance of toxin vs detox that is your footprint.

Good luck and hope your doctor can better guide you and help you it also you do have to be your own advocate and researcher. You aren't going to find it will work to ask what to do and you will just do it. You body and situation is unique to you. We all have to research and learn and so some trial and error and forums are for general ideas to point people in a direction they may not have known or though of and for support.

But only you can find your answers and path
Yes its a ton if work and overwhelming
One step at a time.
You will find you will unravel the answers
Be patient with yourself
The treatments including detox are not instant and do take time and patience and trail and error and monitoring to find what works for you.

I hope at least you have gotten done guidance on what steps and options you have from this point today forward.
Maybe if you can afford a clinic it could be a way to learn and more rapidly get to a place you feel confortable. But you still will have plenty of homework and learning curves and self work and trial and errors.

The doctor protocols even are not going to work same way for every person and it just is never that simple as do this and you will get well for each person.

Hope your call goes well.