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Five Good Days then Crash!

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Posted 6/18/2014 12:42 AM (GMT 0)
I could not believe I was feeling good for 5 days. But then I hit a wall and felt really exhausted and achy. My legs feel stiff and I am wondering if this is just a flare up. I really thought I might be done with this all--it has been 4 months. But maybe I still have a long way to go....I am just so tired of this all. Help!
Posted 6/18/2014 10:57 AM (GMT 0)
Hi Sueg,

I think that 5 good days in a row is really good. It's a good start.

Have you been overdoing it during those good days? That often happens: you feel happy and so relieved that you are better and then you start doing so many things... too many things..., maybe not watching your diet so meticulously? Too much physical effort?

Sadly, no one can predict how long treatment will take, that is one of the things that make it so hard. But 5 good days after 4 months of treatment is not bad at all!

Keep up the good work!

MarieLS

 

Posted 6/18/2014 12:05 PM (GMT 0)
Hi Sueg,

Is it possible you overdid it like MarielS said?

This is exactly what happened to me this week. I had several good days. I even started to do a bit of gardening lately but only 20 minutes at a time here and there. Well, on Sunday I felt really good and did about an hour and a half of gardening - weeding, removing branches, up and down, go, go, go. The next day I was more fatigued and that night I crashed. All my "lovely" symptoms came back: foot pain and leg pain, rib pain, muscles tightening in my back and shoulders, nausea, weakness, dizziness.

Hang in there you will feel better again in a few days. I am on the upswing again.
Posted 6/18/2014 6:58 PM (GMT 0)
Unfortunately, that is pretty common with this disease. Just REALLY REALLY take advantage of the good days and remember them fondly and that they will come around again after the bad days. ;)
Posted 6/18/2014 6:58 PM (GMT 0)
Unfortunately, that is pretty common with this disease. Just REALLY REALLY take advantage of the good days and remember them fondly and that they will come around again after the bad days. ;)
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