Has anybody had completely negative, no bands on Igenex?

What tests did you do if your igenex WB was completely negative?

Thank you, where did you have that testing done?

Where did you have this done?

My LLMD sent my blood work to IGeneX and LabCorp.

Csmm23-Your Igenex test came back as negative? Were you able to treat the Babesia effectively? I will be sending my blood off to Igenex next week and am eager to see what it tells me. My first WB test (from a local hospital) came back with one band positive and then the 2nd WB (from Labcorp) showed no bands positive. All of this is so frustrating I just want some answers so I can either continue to treat Lyme or look for something else that's going on & what that something else would be I haven't a clue.

My test came back negative but I know for fact I have Lyme. I found quite a few ticks on me and I had a nice bulls eye rash. I immediately went to the Dr to show it to him and he said there was no Lyme here and I must have been bitten by a spider.

So being too stupid to stand up to him (back then) I accepted what he told me and went home and continued to see him as I got more and more symptoms.

I was seen by more Drs than you can imagine for all the symptoms in an attempt to find out what was wrong with me. Finally about 5 or 6 years after I got bitten I was sent for an MRI and I remember the Dr calling me to say it looked like Lyme disease! I swear I was in total shock and I did ask how he could tell, he explained but I don't really remember all he said about it.

After that I found a Lyme Dr. which is NOT easy, there was only one in my state. He tested me (Igenix) and it came back negative. He had examined me and listened to my story and I took along a copy of my medical records. That LLMD explained that testing is still not 100% accurate. He put me on some major meds which my body just couldn't tolerate and before we could find a solution he was run out of business like so many other LLMD's. I tried to find another LLMD but none were close enough and so I started seeing Dr's again.

Because of the way I was treated by several those Dr's I refuse to ever go in another Dr's office. I now treat myself with herbs etc and I pray each day for a miracle so I can regain what is left of my life.

This is a nasty disease and most Dr's won't help us, they make us feel crazy.
It's a sin for so many people to be suffering and nothing is being done about it! Maybe someday they will have a test that is 100% accurate but right now they aren't and a symptom check list helps in diagnosing Lyme and the co-infections.

ela I was turned down for IV drugs by my insurance because I had to have a certain number of positive bands....which I didn't.
My insurance also refused to pay for the Lyme Dr. I was seeing.

It seems like to me that we are punished for having Lyme!

Anyway since I couldn't help through Dr. and my insurance I had to start helping myself, I tried Hansa and even though some people have been helped there, not all are, I was one of the one's who didn't get better.

I don't get online too often, just minutes most days, sometimes i don't get on at all. I continue to be bedridden for all these yearsbut i continue to take my herbs etc and pray to live a normal life again someday.

I can relate to your experience prayingforamiracle. I am weary of drs, now I have to fight my insurance company to pay for my abx. They denied the last round of azithromycin, 6/6/14, I just got the denial letter saturday saying I could appeal.

Some flunky in a cubical telling me that according to fda my diagnosis doesnt warrant more tha 60 days of this abx in less than 6 month period. They have no clue if the abx levels drop to suboptimal level that the 'bugs' could go crazy and put me at risk for anoyher relapse. Very frustrated. I know I need to appeal but sick and tired of being the sick one fighting to try and get better only to constantly fight the walls put in my path to getting heathier by doctors and insurance companies.

Not sure why I even have insurance, none of my drs take insurance anymore and now I cant even get my abx covered. Good grief, people with achne can get abx all year round hut I have debilitating illness and I have to fight drs, government and insurance companies....what is wrong with tjis friggen picture! Im just venting cause I need to xall and talk with the insurance rep and im tired of fighting with judgemental, ignorant people.

Sorry for the vent. I know it is hard for eveyone, or most everyone dealing with all the issues associated with lyme and co.

Sorry for all the typos, just not seeing them all, I do correct the ones I see, reading has been a challenge the last fw years.