how dumb are docs? another family member with lyme

You are right Louise - your post made me cry - sorry,just feeling very weak today. I truly hope he can get the right meds soon and fast.

How utterly disgraceful.

I am beginning to ask myself if we, the lymies, are the new lepers, the unloved, the un-cared for, the unclean.

It sure feels like it sometimes.

  Yesterday... I went to an infectious disease doctor. I already have a LLMD that is treating me; however, I need IV antibiotics bc orals are not doing the trick. My insurance won't pay for it. I was told if an infectious disease doctor recommended it, it was the only way I could get it paid for. SO.... I went.. fully expecting the worst.... AND it is exactly what I got.  I have a CDC Positive western blot lyme test... she looked at it, listened to my story and my list of on-going symptoms and told me " Sweetie... you DON"T have Lyme... if you  didn't improve after DOXY than you don't have it!" She made this claim because I did not have an ELISA screening first before the Western Blot. THerefore, she claimed my test was FALSE POSITIVE. Furthermore... she proceeded to give me a list of few illnesses that I might have... Mono.... polymayalgia rheumatica...MS... blah blah blah... I told her the reason I finally was diagnosed with Lyme was bc of all the symptoms I just described. Then she got all nasty and was treating me like I was stupid.... I did not have the energy to argue with YET ANOTHER idiot doctor that knows WAY less than I do about this disease, the testing and treatment. WHY WHY aren't these doctors following the scientific research that is so readily available?? I do not feel like I can even get the help I need. I do not have thousands of dollars to treat this disease..WHAT THE HECK!!!!

Write what reviews? Do you mean write reviews on doctors we received substandard inappropriate care? I dont understand what reviews you mean...do you have an example?

lol an example though I am not going to keep this one up!

Still have no idea how this guy got his degree. Waited for the appointment for 4 weeks. Had a stack full of paperwork and was told in 5 minutes that he couldn't help me. The only thing he could suggest was a spinal tap (extremely inaccurate testing). I walked out knowing that I had an appointment with another doctor soon. Within the two weeks waiting for the other appointment I lost ten pounds, got down to 90lbs, my resting heart rate increased by 30%, I started having heart palpitations and vomiting. Severe insomnia, neurological issues. This is all on file with my PCP. When I got to the other doctor he couldn't believe that another doctor said he couldn't help me or suggest any other test. I was started immediately on an aggressive antibiotic regimen. Every aspect of my life has improved and I am working and functioning well again. Almost normal-My heart rate has come back down to 'almost normal' too I will be done with treatment shortly. My cardiologist confirmed that I had heart involvement associated with the illness. To date my parents are approaching their 70's and have never had any heart issues or even been to a cardiologist. Bottom line: I wouldn't let this guy treat my dog Also, his office tried to double bill me. Wasn't too much of a hassle to get it corrected.

There's also the "Ratemds.com" site - I've used them a lot over the years.

Many of them are so outrageously wrong that it has to be just plain willful ignorance.

Don