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Posted 6/27/2014 4:32 AM (GMT 0)
hi all

I am feeling significantly better. I have my monthly llmd appointment tomorrow. I am about almost 70 days or so into treatment. At my last appointment a month ago I still had severe panic and anxiety. Now I have been on rifampin ( with other things) about 40 days and I notice a huge improvement.

I still get overwhelmed and cant at all be totally normal yet- I mean the anxiety kicks in sometimes. But so much better than I was a month ago.

I still have significant tinnitus- that is as loud as ever. Sometimes I wonder if it is the antibiotics not the lyme causing the tinnitus, I am not sure.

I know I still have to be in treatment at least a couple of more months, but I do really notice a big improvement in my mental state and physical state.

I will let you guys know what my doctor says after my appointment tomorrow. Again, like I often say on here, I don't know what will happen in the future or when I get off the antibiotics. But I do feel so much helathier physically and mentally than I have in a whle so I am glad about that.

Also, I have been gluten free about 2 or 3 weeks now- and I notice a big improvemtn in symptoms since I did that. I do miss bread and pasta but it is worth it if I am feeling this much better.

Whereas a month ago I was 30% better I may be 55% or more better now. Not quite sure as it is hard to asses. Also, we moved about a week or more ago to a much cleaner healthier house- out of a musty house- and our new house has more sun , a bigger yard, and fresher air inside and I think that all helps too.

Post Edited (Katebirch) : 6/26/2014 10:35:21 PM (GMT-6)

Posted 6/27/2014 4:57 AM (GMT 0)
Katebirch such a great news! I am SO happy for you! I had tinnitus too and it eventually went away as I continued to treat. Keep getting better!
Posted 6/27/2014 5:04 AM (GMT 0)
Thanks, lymebabe. I plan to keep getting better and I hope you keep getting better too!
Posted 6/27/2014 5:06 AM (GMT 0)
Yep...just take one day at a time girly and be thankful for any progress is all we can do! So glad your having some improvement and seeing that the "light at the end of the tunnel" is possible and within reach :))

xx's-Courtney
Posted 6/27/2014 5:08 AM (GMT 0)
great news Kate! Good luck with your appt.
Posted 6/27/2014 5:39 AM (GMT 0)
I'm happy to hear about your improvements. Keep going that direction. :)
Posted 6/27/2014 5:49 AM (GMT 0)
I'm so glad you're feeling better. Keep us posted on your appt.
Posted 6/27/2014 6:54 AM (GMT 0)
Chewing through new symptoms and dealing with those first herxes is not easy at all... But I'm really glad you are seeing improvement!!

Keep on doing that good job!!

MarieLS

Posted 6/28/2014 12:00 PM (GMT 0)
hi all- had a good appointment yesterday. My doctor said (vefore I told him the percent I thought) also that I am 55-60% better! He also said perhaps 6 more weeks of antibiotics and then I can be done with them and switch to herbs only- that will be great!! I am feeling pretty good. Definately still feel that 45% lyme still but much better than before.

Mistermike did you want to know my detox protocol or whole protocol?

For detox I have reishi mushroom, an herbal liver detox (thorne liver cleanse), the life tree liver detox, liposimal gluthione and milk thiste.

But on a regular basis I mostly take the milk thistle and liposimal gluthione, not the others as much.

And the gluten free, I have to say- I was skeptical about it and didn't do it until 2 weeks ago- maybe 3- but it has helped so much. I also do minimal sugar. And lots of probiotics.

I do have a "leaky gut" from too much antibiotics but the doctor gave mea perscription probiotic he said shold help.

Post Edited (Katebirch) : 6/28/2014 6:06:48 AM (GMT-6)

Posted 6/28/2014 12:05 PM (GMT 0)
also, I wanted to say i anyone has questions about my protocol I am happy to share. I do think my llmd is very good. And I know a lot of doctors are still guessing with  lyme, so  am happy to share what is working for me. Of course I am still a wrok in progress but at least I see progress! I have shared my protocol on here a lot laready but am happy to share if anyone wants to know.

Of course we know there are many different strains of lyme and coinfections so different people need different protocols-

but for me basically it is minocycline, plaquenil- then the plaquenil got taken away and added in malarone, and then rifampin.

For herbals cryptolepsis, artemesia,

then also 5-mthf, norival, nac.

Good luck everyone. I hope we can all beat this nasty terrible lyme infection. Wishing us all health and peace. Kate

Posted 6/28/2014 2:42 PM (GMT 0)
Kate - what wonderful news! So glad to hear this! Thank you for sharing!
Posted 6/28/2014 4:18 PM (GMT 0)
Hi kate - great news!

How long have you been treating? And did you start with doxy, and switch to mino? Or never did the doxy?

thanks!
Posted 6/28/2014 5:14 PM (GMT 0)
I have been doing a proper treatment about 70 days. right before that I did 10 days of doxy on my own. I started treating 7 months after bite. Right after bite I did also 10 days doxy and 14 days amoxicillan.

I think the thing that is working is the combination of medications and the long durations/consistancy.

Posted 6/28/2014 7:29 PM (GMT 0)
Kate, this is wonderful news ! ... congrats, and thank you for being an inspiration !

Did you have red dots or lines on you skin ? ... I think I remember you saying you had some marks on your skin - did these change during treatment ?
Posted 6/28/2014 10:52 PM (GMT 0)
In the peak of my sickness I saw some random lines on my body and worried they were bartonella. But I saw my doctor soon after and he said they weren't and also that the bartonella rash is not that common ( in his experience I guess) and now  I don't think those were anything lyme or co-infection related.
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