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Question for Lymepickle re: my Igenex results
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Lyme Disease
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Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 7/3/2014 8:04 PM (GMT 0)
I don't know if the laws here in Canada are different...so thought I'd ask you what you know?
My results are in...the ND in Victoria has them. Wouldn't tell me anything over the phone - not even if they were a negative. I do realize that they need to be interpreted, but i was curious as to if they were completely negative.
I have decided I don't want to travel to Victoria now..as the ND in my city will treat. So, I have asked the ND in Victoria to send me the results...the receptionist said, "no - you have an appt next week, you can get them then".
It turns out she isn't LL anyway...so not much point in going there...as I will want to see Dr. C. anyway. So, at this point I'm just looking at getting a presc. for Doxy to basically do a challenge.
The receptionist said she may do a consult over the phone and charge me $30. So, I have to pay her, and then pay the one in my town, as well
So, do you know legally - since I paid for these tests...can she hold them hostage...and not agree to fax them either to me or to my ND here in my city?
I thought Drs were supposed to be compassionate...she is aware that the long drive each way is hard on me..and I also can't afford to spend on a hotel...so we do it in one day.
Roxie60
Veteran Member
Joined : Jun 2011
Posts : 1244
Posted 7/3/2014 8:19 PM (GMT 0)
Im not lymepickle but you can tell them to send you a release of records form, end of discussion, you dont have to explain why you want the form. When you receive it put in your local drs name and request all records and just to be sure list the igenix results in addition to all records. Mail it back to them. They have to comply, sadly they can make you suffer and take their sweet time. Make sure you cancel your appointment in the time frame they require so you don't get charged.
if they are not LL they probably wont know how to interpret the resukts unless they are strong positive, a 5 year old could read the result, even if not positive it just rakesa little online rresearch and you can interpret the results. They trh yo make it more difficult than it is.
Sadly this will be the slow process. If you want yo save yourself a trip and want the results sooner looks like they have you as hostage and make you pay phone consultation fee but then at the end of the consultation they yave no legal reason to not send you personally the lab results.
Many of us have geen in your shoes, it is not right. Not sure how to stop the mefical politcak madness.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 7/3/2014 8:28 PM (GMT 0)
She's a ND - and she's putting more stress on me - that's not right. She preaches about
health of the whole body, including stress, etc. Where is her compassion - I guess it's all about
the money for her. Well, I know for sure I won't be going to her. I was considering some IV Vit C or glutathione down the road...but nope, not anymore.
There's no reason for her to hold them..except she wants to extract more cash from me. Shame on her.
She knows the long drive is hard on me...she knows the pain and discomfort I'm in. She should be willing to send those results. She definitely is not creating any good will.
Does she really expect we'll have a good relationship now anyway...after this bantering back and forth?
Geez - can't believe the nightmare continues.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 7/3/2014 8:30 PM (GMT 0)
Roxie60 - you're right - I bet the mods and even the veterans on this forum could interpret the results better than her anyway. She's just started treating Lyme disease recently...and people on her have been looking at Igenex tests for years.
LymePickle
Veteran Member
Joined : Mar 2014
Posts : 2132
Posted 7/3/2014 10:39 PM (GMT 0)
To be honest she should share them no charge. I don't believe in this whole only doctors can interpret these tests. The results are so easy to analyze anyone can understand and interpret them. Dr.C simply e-mailed my test results directly to me! That is the way to do it. As soon as the results came to him he got his receptionist to e-mail them directly to me immediately.
I guess it ultimately depends on the Doctors choice to release them or not . I believe they should be released immediately.
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 7/3/2014 11:15 PM (GMT 0)
Here is the site that I use:
www.reocities.com/HotSprings/Oasis/6455/western-blot.txt
There is only one band that I have discovered is no longer correct on that site - Band 31. It's actually specific to Bartonella, not Babesia (Lyme).
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 7/3/2014 11:21 PM (GMT 0)
So, if I was to never see her again...I have no right to the results?
If I'm switching Docs, she should have to at least send them to the Dr. I am switching over to.
I sent the office an email stating I was authorizing that the results be sent via attachment to email, or faxed...and I would provide her the fax number.
I may have to get the ND here to talk to her.
Maybe my GP could get them. I'm seeing her tomorrow.
Traveler
Elite Member
Joined : May 2007
Posts : 36573
Posted 7/3/2014 11:55 PM (GMT 0)
With a "release of records" form filled out and signed (as Roxie said), you should have no trouble getting your records - all of them - transferred to any doc that you wish!
Here is the US, some doc's won't let us have our own records, they say that they have to be sent to a doctor. I just go with a release of records in my hot little hands and demand that they are my own records and that I have a right to them in person though. That usually works for me, but I don't know if it works the same way in Canada though.
Your GP may be able to just request them -ask tomorrow while you are there!!
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 7/4/2014 12:10 AM (GMT 0)
Thanks Traveler - My GP, even though she may not be interested in Igenex results may request them for me. She has been testing me non-stop since last September, as well as ordering ultrasounds, CT scans, xrays, etc. to try and figure out what I have. She has just been ignorant about
the Lyme disease possibility (not saying that in a derogatory way - just she has no knowledge of Lyme and never considered it).
She has never once suggested it's in my head, and never once told me to go on psych meds...so I think she'll try to help me with this..if she is able.
Roxie60
Veteran Member
Joined : Jun 2011
Posts : 1244
Posted 7/4/2014 2:27 AM (GMT 0)
I hope your gp can be your advocate Girlie. I still feel people should not have to jump through hoops to get a copy of their tests results that we pay for. If a lyme patients bill of rights were enforceable near the top of the list would be directly copying patients on all test results. If they want the legal hoop then copy both dr and patient. It is just wrong to make patients jump through hoops whatever the motivation.
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