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Temporary loss of vision in one eye. . . .
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Lyme Disease
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treehousemom
Regular Member
Joined : Nov 2011
Posts : 179
Posted 7/5/2014 4:25 AM (GMT 0)
Has anyone else ever had this? Just wondering. Asking for my 19 yo daughter who was doing pretty well after Hansa and Cowden, but has been having a downward turn since Feb. Started with motor focal seizures increasing in number and intensity, and now have those under control again, but severe body pain and every once in awhile, she totally loses all vision in one eye. Just black. Went to ER the first time, CT normal, MRI with contrast perfectly normal. Her vision does come back within an hour or two, but remains blurry usually for a couple of days. Third time in the last month.
Just wondering if anyone has had this happen, and does it resolve with further treatment? Is there anything we can do to treat?
Thanks for sharing any thoughts. . . .
Garden Peace
Veteran Member
Joined : Sep 2012
Posts : 4191
Posted 7/5/2014 4:11 PM (GMT 0)
That must be scarey for you and her. I'm so sorry she has to go through those episodes.
I lost 1/2 my vision one time, seeing only 1/2 a persons face. I was told it was a visual migraine. It was stress related and I've only had it happen once, but it could be entirely different than what your daughter has going on. Will you be taking her back to Hansa? I do hope she can start going uphill again. I have a sick daughter also, so I know how hard it is to see them go through this. I wish her the best!!
MarieLS
Veteran Member
Joined : Dec 2012
Posts : 2690
Posted 7/5/2014 4:34 PM (GMT 0)
There was someone else here a while ago, her son or daughter had loss of vision too. I'll try to find the thread, I think the symptom went away.
MarieLS
MarieLS
Veteran Member
Joined : Dec 2012
Posts : 2690
Posted 7/5/2014 4:42 PM (GMT 0)
It was California Cat's son who lost his peripheral vision.
MarieLS
Veteran Member
Joined : Dec 2012
Posts : 2690
Posted 7/5/2014 7:46 PM (GMT 0)
this is one of the threads:
www.healingwell.com/community/default.aspx?f=30&m=2780630
Ccbrunk
Regular Member
Joined : May 2013
Posts : 51
Posted 7/5/2014 7:50 PM (GMT 0)
I lost vision in one eye one time, last year when my migraines were REALLY bad. It was like my vision narrowed down to nothing and then I saw flashing/shimmering shapes. I'm told that was a migraine with aura, I think. It was very unsettling! I'd never had an incident like that, and it freaked me out. Luckily, my migraines have gotten a lot better. I still get blurry vision A LOT, and trouble focusing my vision.
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 7/5/2014 10:17 PM (GMT 0)
Hi treehousemom Im very sorry to hear about
your daughter. Are abx an option for your daughter ? I had blurred and low vision which has resolved with 10 months of ammox and third gen cephalosporin.
I have heard of people going blind from the disease. I would def consult with a llmd asap to try to prevent this from happening again.
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 7/5/2014 10:20 PM (GMT 0)
Cranial neuritis.
CN VII Palsy (facial nerve weakness) is a form of cranial neuritis that is thought by many physicians to be common, however studies suggest that it may be seen in as few as 10% of patients with neurologic Lyme disease. However, in a patient from a Lyme endemic area or in an individual who has previously visited a Lyme endemic area, a presentation of a facial nerve palsy should lead the physician to test for Lyme disease. If the CN VII palsy affects both sides of the face, then Lyme disease should be even more strongly considered as very few diseases cause a bilateral facial nerve palsy. Typically, a cranial neuritis occurs within days to weeks of the initial infection bya tick. If patients experience abnormalities in facial sensation, the cause may be inflammation of the trigeminal cranial nerve (CN V). If central vision appears cloudy or if there is pain on eye movements, these could be signs of an optic neuritis. Pseudotumor cerebri is an intracranial increase in pressure that is not due to a tumor but because of the increase in pressure, there may be pressure on the optic nerve. This pressure could cause visual loss; in rare cases of Lyme optic neuritis from Lyme-induced pseudotumor cerebri, blindness may occur if not detected and treated early. If CN III, IV, or VI are affected, the patient may present with double vision. With involvement of CN VIII, patients may experience ringing in the ears (tinnitus), loss of hearing, vertigo, or ataxia.
http://www.columbia-lyme.org/patients/ld_lyme_symptoms.html
treehousemom
Regular Member
Joined : Nov 2011
Posts : 179
Posted 7/6/2014 1:56 AM (GMT 0)
Thank you all for sharing. .. . Are abx an option? Well, I guess it is a possibility. Though we did use amoxi in the beginning and also Zithromax--she never could get up to a therapeutic level. 1/4 of one doxy caused her to not be able to walk unassisted or get out of bed for days--very scary. I just do not know what to do. . .
Sigh. . . .
treehousemom
Regular Member
Joined : Nov 2011
Posts : 179
Posted 7/6/2014 1:56 AM (GMT 0)
Thank you MarieLS for sharing threads--I will take a look!!
BarnGurl
Veteran Member
Joined : Sep 2013
Posts : 1426
Posted 7/6/2014 2:21 AM (GMT 0)
Well the beginning is rocky for everyone and my dr always told me to take what I could tolerate and not more. So possibly you might want to do something like that and extend the time frame she is taking it. I think you might want to consult with a llmd in your area regarding her vision loss.
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