Low dose naltrexone

Lymebabe

Veteran Member

Joined : Jan 2014

Posts : 1260

Posted 7/11/2014 5:04 PM (GMT 0)

I asked my PCP to prescribe it and he is referring me to people who have the license to do so, which is drug addiction treatment centers. Any ideas on how to persuade them to work with me and prescribe LDN for off label use to help my immune system? Thanks!

Traveler

Elite Member

Joined : May 2007

Posts : 36573

Posted 7/11/2014 6:11 PM (GMT 0)

I would suggest that you find the supporting articles online and print them out. I'm supposed to be getting ready to walk out the door, so I don't have the time right now to help look them up- sorry!

LymePickle

Veteran Member

Joined : Mar 2014

Posts : 2132

Posted 7/11/2014 6:23 PM (GMT 0)

Hey I'm not sure where you live. But if you have a Naturopathic Doctor around with prescribing rights, or of course a LLMD, they can prescribe it.

I believe it has to come from a compounding pharmacy since it is in doses of 1.5, 3, and 4.5 mg. 50 mg is the usual dose used for addiction recovery. If you have low dose, it only binds to the opiate receptors in the body for a few hours which is enough time for the body to make more opiate receptors, as well as more endorphins. The 50 mg dose binds for them for too long and will stay binded to the receptors for like a day or so.

Lymie Lou

Regular Member

Joined : Feb 2014

Posts : 24

Posted 7/11/2014 9:19 PM (GMT 0)

Hi Lymebabe--

This was prescribed to me by my LLMD from Johnson Compounding and Wellness in Waltham, MA. Hope that helps!

Lymebabe

Veteran Member

Joined : Jan 2014

Posts : 1260

Posted 7/12/2014 3:08 PM (GMT 0)

Lymie Lou thank you so much! I think I just need to call my LLMD. I was trying to get this prescribed locally so that I don't have to travel 2 hours back and forth and pay several hundred dollars for my appointment. I might wait till September when I will have a better insurance that might actually pay for the visit.

Lymie Lou did this help you and how?

LymePickle NDs do not have prescribing rights in MA. Unfortunately.

Traveler I did print out some articles and brought them to my PCP but I guess he was not sure if he could prescribe it so he is referring me elsewhere.

MarieLS

Veteran Member

Joined : Dec 2012

Posts : 2690

Posted 7/12/2014 8:26 PM (GMT 0)

Hi Lymebabe,

I'm on ldn since about 2 months, or maybe a little bit longer. I'm not in the US, but in Europe. I don't know if you are on FB, but there's a pretty good group about LDN called 'Got endorphines?'. You could join them?
Also, there is a forum linked to this website:
http://www.ldnresearchtrust.org/

I'm very happy I started LDN. No painmeds would help me (even the strongest ones). I started taking it and immediatly sensed an amelioration in muscle pain. Then after about 1,5 month I started feeling a decrease in my localized pains. Not every day is better, but there is definetly a positive change in my pain.

MarieLS

Lymebabe

Veteran Member

Joined : Jan 2014

Posts : 1260

Posted 7/13/2014 3:46 PM (GMT 0)

Thanks Marie, I had no idea about the FB groups!

I am glad you are seeing progress, I know that you have suffered a lot!

Girlie

Forum Moderator

Joined : May 2014

Posts : 48365

Posted 7/13/2014 3:55 PM (GMT 0)

So good the the LDN worked for you, Marie!

I had tried it several months ago when lyme disease wasn't yet on my radar. But it didn't work for me.
(I was trying it for pain, too)

MarieLS

Veteran Member

Joined : Dec 2012

Posts : 2690

Posted 7/14/2014 2:00 PM (GMT 0)

You're welcome Lymebabe!

I was so desperate because of the pain, I think I was going to loose it, I started it just in time...

Girlie, how long did you try it? For some people it can take months before they experience any amelioration.

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