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Question for Delmar

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Lyme Disease
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Posted 7/14/2014 4:38 AM (GMT 0)
I see your treatment was zithromax - 1200 mg.

Is that the first abx you went on?
Would you mind sharing your protocol? - how many weeks you were on zithro, and if you added anything early on, and did the zithro alleviate some of the bart symptoms too?

I apolgize if I've asked this before...my brain isn't functioning very good today...and not remembering things i should.
Posted 7/14/2014 1:13 PM (GMT 0)
Of course! No problem :)
Yes, this is the first and only abx so far. I see her tomorrow and I think she is going to add something else into the mix as its been 3 months.

Zithromax 600 mg/twice a day - AM & PM (with food)


My protocol is this:
Morning: 600 Zithromax, tablespoon braggs apple cider vinegar, light breakfast (typically I juice spinach and berries) 1 inner defense, 2 drops thieves under tongue, 2 oral glutathione, 2 oral phosphatidyl choline, try to do a work out or get a good sweat going 30 minutes after 1st abx.

Afternoon: 2 more of each glutathione & PC, multivitamin, calcium/D, 1 inner D, cod liver oil (3 times a week)

40 drops Cats claw

Evening: 600 Zithromax, l-lysine, 1 inner defense

30 drops cats claw

Before bed: turmeric, milk thistle, 2 drops thieves under tongue, 325 mg magnesium (citrate) -- magnesium has really helped me with the musculoskeletal stuff
Detox bath before bed - 30 minutes
(And if I can talk my husband into it...:)) about 3 times a week a back massage with some of the oils.

I also use red root intermittently through your the week for swollen lymph nodes.

(Starting next week a friend of mine with YL is going to start doing raindrops on me once a week (its YL oils along the spine).
I'm also going to start using the Lyme bullets - I'm just waiting to get the capsules and the frankincense.)
Posted 7/14/2014 1:19 PM (GMT 0)
I feel like all of my symptoms are being addressed, but some see to be hanging around more than others. I definitely want to mix things up and be sure everything is covered.

But Zithromax has been a good one for me!

Prior to being diagnosed I was on Bactrim for a short time, and had a major herx reaction to it - the biggest herx I've had yet... I was told it usually hits Bart, so hoping she will add Bactrim at least to see what happens at some point in my treatment.
Posted 7/14/2014 2:14 PM (GMT 0)
Oh and I forgot to mention I'm also been doing IV Glutathione/PC once a week for the last month. I will be taking a break from that for awhile though because I'm going back to KS/CO for a few weeks, but continuing with the orals.

Glutathione/PC help the immune system and help detox the body.
Posted 7/14/2014 3:04 PM (GMT 0)
I also eat very clean: mostly organic, many vegetables, some fruit, limited meat (I was a vegetarian prior to all of this but now my diet is so limited - I now eat a small amount), no gluten, very very little sugar (sometimes I have to have a piece of chocolate:)), I use stevia occasionally in my teas - I buy lots of detox and green tea, and drinking a lot of water/lemon water.

I make my own natural cleaners, lotions, big spray, organic sunscreen, organic laundry detergent, no perfume - just essential oils, natural soaps and deoderant...

Air purifiers in bedrooms, really good filters in ac, dehumidifier, etc

Trying to elimate as many toxins as possible, but some of this (cleaning products and clean eating) I've been doing since before I was sick.

Sorry I'd that's tmi :)
Posted 7/14/2014 4:04 PM (GMT 0)
I've fallen off the gluten-free wagon the past few days. Feeling so crappy, that I'm finding comfort in junk food. Yah, like that's going to make me feel better!!
I have been dairy free for a while, but not sugar free.

Thanks for the info Delmar - I'm trying to decide if i want to dump the doxy for mino or zithro. I don't want to leave it all in the ND's hands, as she isn't totally LL yet. And I'm unable to see the LLND until August.

I suspect I have bart - maybe babesia, too. So, what I take, I'd like it to be compatible with adding a bart med to it.
Posted 7/14/2014 7:10 PM (GMT 0)
Oh good Mister Mike! I'm glad I can help others a bit, many have helped me through this. Incidentally, making a lot of my own products actually winds up saving me money in the long run.

Girlie - you're welcome! I hope you are able to gather a lot of good info to discuss with your doctor. Oh and please stop the gluten!! ;) You'll feel better from that alone. At least that's been my experience.
Posted 7/14/2014 7:34 PM (GMT 0)
So, I spoke to a LLMD on the phone (recently retired) and he thought there was no point in switching from doxy to mino...as I am fair with very sensitive skin, and the mino could affect it too.

So he thought zithro was a good choice - 250 mg twice daily. But, I see you're taking 1200 mg per day. I'm wondering if 500 mg will be enough. He also said to take it for 5 days on and 5 days off.
I haven't seen anyone on the forum pulsing it like that...so now I'm kind of concerned.
Posted 7/14/2014 7:59 PM (GMT 0)
I don't know for sure. Maybe Chapelle would have some good advice on that.
Makes me wonder if I'm on too much... but trying to trust my doctor... (It's hard for me to trust MDs after everything I've been through the last few months), but she's been doing this 35 years and treated her own son.

Please let me know what you find out
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