Louise74 how are you?

hey there thanks for checking in.
Just not feeling well. No one can figure out why im in so much pain. One doctor has guessed glossal pharanygeal neuralgia, but im doubting this. Every time I swallow it feels like razor blades and then the pain just doesn't stop, its 24/7. Its so bad I cant function. So they think this pain then triggered a secondary pain syndrome. All this on top of the lyme, i'm at a loss.

I'm now switching doctors to see if I can get some help. Im giving it another month and if the top doctors in the state cant help me, then I don't know what to do.

I'm also going to look in sponagule since they do both lyme and chronic pain.

thank you. when I first got ill a few months back I was blessed not to have any pain and now this. its all so confusing and just so out of nowhere and so frustrating to not have an answer. I really cant tell if its the lyme/bart raging, or a allergic reaction to some of the herbals, or I was poisoned by tea I ordered from china. all I know is that I only had a few symptoms about a month back and something set off a firestorm. im beside myself. im scared because the pain is so intractable. And for the most part the severe pain is concentrated in one specific area.

sometimes I wonder if its lyme because there are no good days at all only days full of pain. I have read a few stories about a few people being in horrifying pain from lyme, but its weird because I was on the uptick.

so im on the hunt for a solution, to save myself and to get my health back.

im going to look into sponagule because my onslaught of symptoms seems to come after taking various medications or supplements. for example after I took one klonipin pill, I started to have severe gagging and dry heaving in the exact same location in my throat, that lasts to today.

its too bizzare!!

thanks girlie,
its not where the ulcers are and they may have close up. Its right where your adams apple would be (searing pain there when I swallow) which radiates up into the ulcers are. So more likely the nerves in that whole area are being irritated.

Girlie,
the more I backtrack the more scared I get. I did the dumbest thing and I ordered hottunyia tea from china. I got it on Amazon so I thought it was legit but it was shipped right from china. Im so stressed thinking I brought this on myself!!

Maybe its totally coincidental but I had taken hottunyia (nutramedix) around the end of april and got some burning sensations for the first time in my mouth and stomach. I kept on this through May sometime, thinking they were little herxes.

The burning wasn't terrible, but it was there off and on. Then I ordered the HH tea from china and started drinking that at the end of May. I drank it 3 times. After the second time I drank it my throat felt like it was closing and the burning sensation had intensified. By the beginning of June I was paralyzed with pain.

Leads me to believe that I possibly had a reaction and possibly did damage to alot of damage to nerve endings from drinking the tea? Its just totally a theory, which sounds insane. No one really believes this but the timeline makes sense. But maybe that is where other burning in my body came from as well?

Still just a guess!!! If I can im going to have my tea analyzed at a lab for pollution or chemicals.

Im just a mess. Hoping my body can recover in time so I can get back to my lyme treatment.

yes, ive called a bunch of labs and testing is super expensive. But I did talk to some scientists and they said, if I really got sick from the tea it would be heavy, heavy pesticides or herbacides which may have caused the burning and nerve irritation. Or the only other thing was industrial cleaning supplies. So im going to order pestacol-c and start detoxing and hope for the best.

Well, pain still brutal as ever. I went to a pain doc the other day who told me I had burning mouth, glossal pharanygeal neuralgia and fibromyalgia, not lyme. But then said it's possible that fibromyalgia is really chronic lyme and was untreatable. Basically he said there was nothing he could do for me. What? Literally, I think he was just throwing darts at the dart board, and doesn't really care. He recommended I do CBT therapy online. The pain is constant in a particular location, there has to be a root cause being overlooked.

So I left him and I'm moving all my stuff to a much better place, that is taking me alot more seriously.

I literally spent all day talking to scientists, labs, the chemists. They had varying theories but one insisted that it wasn't the tea, and that was a pure coincidence.

So I'm back to square one and still miserable, can't sleep it brutal. But working on it.

Actually I did two sessions of mild HBOT. It was too expensive to keep going. I didn't notice any miraculous results after only two sessions but maybe it would have in the long term. I have a rife but haven't tried it for pain, but that is worth a try.

Going to the chiropractor tomorrow for laser treatment. Wish me luck.

Finding a new pain doc too.

I have and it helped with some other issues. So im going to try the chiropractor first and go back to the acupuncture guy if the chiro doesn't work out for me.