Spinal spasms / vibrations from head to feet

Creekside1

Regular Member

Joined : Sep 2013

Posts : 44

Posted 7/20/2014 1:33 PM (GMT 0)

I've been having terrible spinal spasms / vibrations. My spine hurts mostly at my bra line and waistband, my legs and feet tingle, and I have head tremors. It's worse at night - I feel like I'm plugged into an electric fence charger. I wake up feeling like I've been beat up all night - exhausting. Because my CD57 is higher than 100, my doctor and chiropractor both tell me the lyme is under control. Is this really "under control"? Does this ever just go-away or is there something I can do?

Traveler

Elite Member

Joined : May 2007

Posts : 36573

Posted 7/20/2014 3:26 PM (GMT 0)

This sounds just like some of the Neuro Lyme symptoms I had. Not sure how your docs can say it's under control when you have those kinds of symptoms. Have they gone through training from ILADS (International Lyme and Associated Diseases Society)? If not then they may not truly be "Lyme Literate" and if they did go through that training, then all I can say is not all LL docs are created equal.

What I would do in your situation is first change docs (but that's me) and either get back on or stay on Lyme treatments. Although it may be time to switch up your Lyme treatment to get the remaining bacteria.

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