IMPORTANT: HELP PASS IMPORTANT BILL REGARDING LYME AND TICK BORNE DISEASES

teragram

Veteran Member

Joined : May 2013

Posts : 4039

Posted 7/29/2014 9:01 PM (GMT 0)

Phyllis Mervine, chair of Lymedisease.org is urging us to take action on the bill HR 4701. This bill requires the secretary of health and human services to SUBMIT A PLAN TO CONGRESS FOR IMPROVING OUTCOMES OF LYME DISEASE.

I just received an email from Phyllis.

If you want more info., here's a link, but, sorry, it's NOT A TINYURL. I'm trying to dash it off.

Failing that, email me, and I can forward her email to you.

http://www.lymediseaseassociation.org/index.php/federal-legislation/203-legislative-session-2013-2014/1248-attention-lyme-community-federal-bill-may-move-action-possible

Margaret

Garden Peace

Veteran Member

Joined : Sep 2012

Posts : 4191

Posted 7/30/2014 6:41 PM (GMT 0)

tinyurl.com/k8qk3tx Here's the shortened version.

opugirl

Veteran Member

Joined : Nov 2012

Posts : 3923

Posted 7/30/2014 8:31 PM (GMT 0)

Thanks for posting Margaret!!

Traveler

Elite Member

Joined : May 2007

Posts : 36573

Posted 7/30/2014 8:41 PM (GMT 0)

I just saw on Facebook that the 'other version' passed - anyone know if this is correct?

teragram

Veteran Member

Joined : May 2013

Posts : 4039

Posted 7/31/2014 12:29 AM (GMT 0)

Oh oh. Does that mean "watered down?"

You're welcome.

I do hope people acted on it.

Margaret

Traveler

Elite Member

Joined : May 2007

Posts : 36573

Posted 7/31/2014 2:15 PM (GMT 0)

Thanks LymentheCuckoonut!! I see that it passed with the inclusion of Lyme literate doctors, scientists, patients, and family members included in the committee as well. Interesting that they (LDA.org) posted on FB that it was the "other" one as if it was the version that we didn't want!

Just happy that it passed this stage of enactment!

Mississippi Jane

Regular Member

Joined : Jun 2014

Posts : 248

Posted 8/4/2014 7:40 AM (GMT 0)

Oh, Traveler! I wish you could get on that committee!

Roxie60

Veteran Member

Joined : Jun 2011

Posts : 1244

Posted 8/4/2014 12:45 PM (GMT 0)

I second that, someone who knows first hand what ig is like being undx, misdx fof years, dealing with mainstream drs, trying to get correct info, testing and treatment. Im sure thete are others here that would also be able to give experience d input. I know there is a desire for more science and less anecdotal evidence but that is all we can do is tell our experiences until the science gets better and less politicized. How can so many people who do not know each other share so many similar experience, we cant all be hypochondriac s or have psychiatric problems thar drive us to ruin our lives making this crap up....better stop here before I get upset....

✚ New Topic ✚ Reply