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Lab Results and feeling discouraged

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Lyme Disease
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Posted 8/28/2014 3:51 PM (GMT 0)
I have a great LLMD and he ran a lot of test and the results are pretty discouraging. I thought I just had Lyme, but I seem to have all these other issues. I tested positive for Celiac and have the both MTHFR genes. I also had a score of 53 on the CD57. I have been reading more on that MTHFR gene and its really scaring me. It seems to be linked to a whole other range of diseases, including cancer, bi-polar disorder, anxiety, depression, alzheimers and parkinsons. The more I learn the more I am finding out I seem to be a mess! this is all quite discouraging. I was really hoping that I just had Lyme and that was the end of it!

It seems with MTHFR you have to have a whole lifestyle change, which I am already am doing, but there is so much more I need to do. I was so looking forward to going back to going back to normal after I was done with Lyme treatment. I am sick of this crap, I cant eat anything (im skin and bone as it is) and I need to take all these FREAKIN SUPPLEMENTS, I need to eliminate other stuff too...this is all such a pain in the A**!!!! I am sorry for the rant, I just needed to vent. I sound like a little spoiled brat, I know there are other people dealing with far more serious stuff than this, but I just had to get it off my chest.

The worst part of all this, is that I have 2 small children and I used to live in fear that I passed Lyme on to them, now I have more to things that I have to worry about passing on to them.
Posted 8/28/2014 4:05 PM (GMT 0)
It's okay to vent...that's what we're here for...we understand...we're all in the same boat!!!
Don't worry about celiac...that's one that you can treat without any meds whatsoever and be fine. Your only med is to stay off gluten...and although difficult at first, once you get used to it, it's not a big deal.
I have a 21 year old son who has celiac...and he's been gluten free since he was 14 (after a bit of a bumpy road when he was first diagnosed and was "cheating").
He is healthy today, no issues whatsoever (and he had several prior to going gluten free)...and he has no problem with the gluten free.
I don't know much about the MTHFR gene - as I haven't been tested for it...but probably should.
Hang in there...and vent as much as you want. We'll listen.
:-)
Posted 8/28/2014 4:33 PM (GMT 0)
Everyone needs to vent at some point, especially when you're going through a difficult time in your life. This is actually a great place for that. The chances of someone else experiencing something similar is pretty good. It's terrible in terms of health, but comforting to know you're not alone. Don't worry, you're not alone.
Posted 8/28/2014 4:39 PM (GMT 0)
Agreed! This is a great place to get that off your chest!!! Even if we aren't experiencing the same symptoms, we can understand!!

And about the MTHFR mutations - there are treatments for that so that you can heal and go on.

Hang in there!! Keep on pushing forward and you'll make it.

BTW- I'm gluten free too. Not much fun, but not having to deal with the issues I was having is worth the extra hassles!
Posted 8/28/2014 4:44 PM (GMT 0)
cccmama there are worse things than MTHFR. In my opinion the HLA mutation is much worse. MTHFR can be easily fixed by correct supplementation and diet. With HLA your entire life is literally dictated by your environment and hidden mold in food both of which can become unsafe at any time. I lost my job due to HLA and now I need to reinvent myself because of it. I need to do something where I am in mold free environment. I am trying to just function day to day and not think about the future.
Posted 8/28/2014 5:10 PM (GMT 0)
Thanks for the encouraging words. Yes, there are much worst things to have. I just feel like I cant catch a break, I am sure its the anxiety talking but I feel so overwhelmed with this info. My mom says the more you find out the more you will make yourself sick. I think she is right. Ignorance is bliss - I was actually pretty upbeat when I started the lyme treatment because I felt there was a light at the end of the tunnel. Hearing about this other stuff just bums me out, its never ending. there is always something to worry about.
Posted 8/28/2014 5:30 PM (GMT 0)
I'm glad you found this forum so you have a place to vent. It's good to talk about your frustrations so people will know what you're going through and offer suggestions that may help you feel more hope. It can get overwhelming and you need to talk about it. Just take it day by day as much as you can.

Do you have a support group in your area? They can be helpful.

Hang in there. You will improve!!
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