I Need help finding an LLMD in Oregon or Washington! PLEASE HELP ME!!

In 2009 I was diagnosed with a rare disease called Inclusion Body Myositis (IBM). I was put on 100mg of prednisone a day for 3 months. After seeing my health get worse, my doctor said the prednisone treatment was to rule out polymyositis. I was told IBM is an incurable disease, and all that could be done for me was to manage my pain, which was slowly becoming unbearable. In 2012, while visiting my neurologist, the doctor gave me a kit for lyme disease testing. The results were positive, and my family practitioner began what has become a 2+ year antibiotic treatment. Since then I have had good days ( cane only), and bad days (mobility scooter). no real pattern except for the fact that the bad days have become greater, and the good days.
Long story short, I am on some powerful pain meds, and its considered a good day if I can get out of bed just to sit in my chair.
My question is two-fold: 1). does anyone know of a great Lyme doctor, and
2). Is it possible the 2 are related (IBM and Lyme's) or any of the myositis's?

Thank you!

Post Edited (martyr572000) : 8/30/2014 7:25:54 PM (GMT-6)

I was diagnosed with IBM when some blood work my neurologist had done. She said there were some elevated numbers that alarmed her. She then sent me in for a muscle biopsy, which showed I had one of 2 diseases. Polymyositis, and IBM were both possibilities because one of the 13 stains they did came up inconclusive for IBM. the other 12 were all definite positives. The deciding factor was the prednisone. If I got better it would have been polymiositis which is treatable and in most cases curable. I got worse, which meant IBM for sure, no cure, and no known treatment. Just pain management. I am on fentynal patches and oxycotin for pain, lyrica for muscle spasms, and an anti-depressent that seems to be not working, and a sleep aid (yet I still suffer from insomnia).
I agree, I need a LLMD.
Thank you so much for answering quickly and with good advise!

I think that having lyme opens the door to many other disease we may be predisposed to. Since it messes up our body system of defense, we are susceptible to anything....it depends on our genetic code, who gets what, when and the risks factor, of course (in our case, lyme as one risk factor)...just a thought.