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At the Onset of Sleep

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Lyme Disease
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Posted 9/10/2014 11:31 AM (GMT 0)
This is a very frustrating symptom. Right at the onset of sleep, I will have an involuntary movement, kind of like a hypnic jerk, but without the falling feeling. This can be as little as my thumb moving, or as big as my whole arm or leg. This does not happen at all during the day. It happens as soon as I transition to sleep. Keeps me up most of the night. Anyone know what causes this and what can help? Thanks.
Posted 9/10/2014 1:51 PM (GMT 0)
I have this too, except it can be severe for me. I had this for about 6 years and it suddenly went away. Now I get it only occasionally. I asked my regular doctor and they said it was normal and there was nothing to do for it. You could have a sleep study or look into treatment for restless leg. Is it part of lyme? Probably. But I had this when I was totally healthy and this was my only issue. Now this symptom has gone away on its own but I got really sick with a slew of other symptoms. It's just weird.
Posted 9/10/2014 3:26 PM (GMT 0)
I had this really bad with lyme, after I started abx it went away. Then it came back when I went off of antibiotics (but not as bad). I was given higher doses of magnesium aspartate and rhodiola and it went away. I have been off of both of those for at least 8 months and not had an issue again.

Hang in there! It is super frustrating but it goes away!
Posted 9/10/2014 3:54 PM (GMT 0)
I have this too, but after starting treatment has diminished greatly. Still get slight jerks occasionally.
Posted 9/10/2014 4:17 PM (GMT 0)
Me too! It is very frustrating for sure. It comes and goes but I have to say it has been far less since starting the herbal protocol I am currently on.
Posted 9/10/2014 5:59 PM (GMT 0)
Yes, I used to get it...hated it. It's gone now. thank goodness.
Mine came on with Lyme...never had it before.
Posted 9/11/2014 10:07 AM (GMT 0)
Same here! It is so aggravating… just as you're drifting off…the jerk startles me awake. Most of the time for me, it's a limb so my whole body gets into it.

I have had some relief after I started taking Low Dose Naltrexone, but I have to say that with starting A-Bab and A-Bart, theeeeyyyyyy're baaaack….

-p
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