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Hubby more fragile from all this, too.

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Posted 9/18/2014 11:21 PM (GMT 0)
How are your significant others handling this? Are they taking it all in stride?

I know it has affected my husband, as the financial pressure is solely on his shoulders now...but I realized how fragile it has made him last night. It's more than just the finances.

My 21 year old son (our only child) has been working as a senior team leader for a chain of stores that came to Canada just over a year ago. He started out as a team leader and moved up to a senior team leader. Last night he came over to tell us some good news...he has been promoted to executive level with a big pay increase and will be starting 6 weeks of training, and then moving to a bigger city - 3 1/2 hours away from us. He will be the executive team leader of the HR department of the store there. When my husband hugged him and said how proud he was...his eyes welled up with tears. (my husband's eyes). After my son left, we discussed my son's promotion, and his eyes' welled up again.
Two years ago...this wouldn't have happened - it took a lot to see a tear in my husband's eyes. He's not cold...just strong in that sense.

Are you finding your spouses/boyfriends/girlfriends are greatly affected by this illness?
Posted 9/19/2014 12:35 AM (GMT 0)
For sure.

Alcoholics need AA and their families need Al-Anon to for support from dealing with the alcoholic.

Lyme is a chronic disease as addiction is a chronic disease!

So in a sense metaphorically, we are the troubled alcoholic (this forum is our AA) and our family is affected by this disease (may need support also).

This is just a metaphor that comes to mind to say yes our families are affected as well by this illness. Def all my fam (who cares) is affected. My bro and sisters and I grew up tight and they are my BF's in life. We all keep in touch as much as possible even though we're older and all have families. I am the oldest and they could ALWAYS count on me and now its like they dont know what to think when I start talking all this lyme craziness. They try, they do. But its so hard. (The other "fair-weathered" friends in my life have pretty much died off since the "seasons" began to change a bit)

All I know is when I do come out of this mess....I will be the best me. I yearn for the day to look back on this and say "what a frkn journey" that was.
Quoting Marilyn M. "If you cant handle me at my worst, you sure dont deserve me at my best" is what I already take into consideration and will be forever and utmost grateful to the few who have been there through this w/me.


xx's-Courtney
Posted 9/19/2014 2:21 AM (GMT 0)
If it's hard for friends, it's gotta be super hard for hubbies and wives. That's why there are caregiver support groups. It's also hard to be your own caregiver, with no one taking care of you, because Lyme isn't cancer or something of the sort that people recognize.

This is only my guess, but it might be important for a hubby or wife to take time away from you and do things he/she enjoys, but by him or herself.

Whatever you as the patient should do, is never to feel guilty.

Margaret
Posted 9/19/2014 2:39 AM (GMT 0)
My hubby does pretty well with it, give or take a day here and there. He went through a much worse time when I was so sick in my 20s, early 30s, not long after we got married. He stuck with me through that and is now doing it again with me and our daughter. He has his church activities that give him a break and I'm not doing horribly bad like I was before. I went through a long menopause and he made it through that! So he's here to stay.
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