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I forgot another appointment!!!

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Posted 10/2/2014 2:40 PM (GMT 0)
I have NEVER missed any kind of appointment........until now! I have missed 2 orthodontist appts (for my kids) in the last month! I just literally blanked out! I am horrified as to what the dr. must think. I want to explain to them my problem, but am afraid they won't take me seriously. Most people don't take Lyme seriously. I have been going there for 3 yrs now and have never missed an appt. I am terrified that they think I'm a flake.

My memory has quickly deteriorated in the last year. Will this ever get better???

I am worried that I have early onset Alzheimer's. It really is that bad.
Posted 10/2/2014 2:42 PM (GMT 0)
yes, you will get better. I know the doctor you referred to that you are seeing and he is one of the best llmd's out there. He will help you! It takes time. 6 months from now you will likely feel so much better. Hang in there. Even less than 6 months you will feel better- I was just throwing out a random time to say it doesn't happen right away but it does happen.
Posted 10/2/2014 4:35 PM (GMT 0)
Yes, it will get better. While you may or may not want to have that conversation with your dentist, I would suggest that you use things to help remind you of important dates and details.

Do you have a smart phone? I know that most people do- although I don't LOL! - so here are a couple of links to show you some smart phone apps that may be helpful!!

lymedisease.org/news/touchedbylyme/phone-apps-for-lyme.html

campother.blogspot.com/2011/03/free-or-cheap-iphone-apps-for-lyme.html

I still use my dumb phone to set alarms to take pills and appt reminders - I've also trained myself to write down everything - I buy the college ruled notebooks that are on sale right now and use several of them each year just for taking notes to remember this or that!
Posted 10/2/2014 4:41 PM (GMT 0)
Thanks for the ideas Traveler. I do have a smart phone, but I don't know how to use it! Lol. Guess its time to learn.

My brain has really turned to mush.
Posted 10/2/2014 5:35 PM (GMT 0)
You can always go back to doing things the 'old school' way - handwriting notes like I do! LOL! I should have bought stock in 'sticky notes' & notebook companies long ago!!!
Posted 10/2/2014 8:22 PM (GMT 0)
Hi! I'm just perusing this forum to see if I could learn more about lyme disease because I see that brain fog is a symptom. I have major brain fog. I don't have a diagnosis as of yet but my rheumatologist thinks its rheumatoid arthritis, lupus, scleroderma or ankylosing spondylitis.

Anyway, after reading your comment I thought I'd share some of my experiences with you so you don't feel left out. lol I too feel like people think I'm a flake and I hate it. Especially my co-workers. I DO write things down on a calendar so I don't forget them; unfortunately, I still forget them. I have looked at my calendar and see that I have appointments for the following day and by the following day I forget that I even have anything to do and realize a day or two later that I missed something important like a birthday party, wedding, dr appt, etc. This one will give you a chuckle...I got confused once on my way home from dairy queen in my very small town of 2,500....YES, 2,500; not 25,000. It's now the big joke in our household. When I give my dear hubby a hard time for something he'll say, "well at least I know how to get home from dairy queen". lol

We have to joke about it or I would get so darn depressed I would never leave the house. I hope things start working out for you. Best wishes!
Jen
Posted 10/2/2014 9:04 PM (GMT 0)
Hi Jen,
Welcome to our little spot on this wonderful site!! I would encourage you to read through as many posts here as you feel like!! Lyme can mimic all of those conditions that you mentioned! And it would be nice to know that you can actually heal from whatever symptoms you are experiencing!!

The best labs for testing for these infections are Igenex and Stony Brook Labs. I would encourage you to get both the Western Blot and the PCR tests to see if they can find any evidence of the infection.

The other thing that is often done is that a LLMD(Lyme Literate Medical Doctor) will start the patient on high dose antibiotics to see if they have either a herx (an increase of symptoms) or if you have symptom reduction.

We can help you find a LLMD to see if you wish, and we can help answer likely any questions that you may have!
Posted 10/3/2014 12:19 AM (GMT 0)
Hi Utahgal,

It will get better. I promise! I understand how embarrassing it is. Training yourself to write everything down in the same place - and then checking the place - is key.
Posted 10/3/2014 1:47 AM (GMT 0)
Thanks everyone for listening.

And Jen, your story about DQ made me laugh! Thanks! I needed that today.
Posted 10/3/2014 5:06 PM (GMT 0)

Traveler said...
Yes, it will get better. While you may or may not want to have that conversation with your dentist, I would suggest that you use things to help remind you of important dates and details.

Do you have a smart phone? I know that most people do- although I don't LOL! - so here are a couple of links to show you some smart phone apps that may be helpful!!

lymedisease.org/news/touchedbylyme/phone-apps-for-lyme.html

campother.blogspot.com/2011/03/free-or-cheap-iphone-apps-for-lyme.html

I still use my dumb phone to set alarms to take pills and appt reminders - I've also trained myself to write down everything - I buy the college ruled notebooks that are on sale right now and use several of them each year just for taking notes to remember this or that!


Great advice!
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