Update to protocol

So I experimented with just pulsing a single biaxin or single minocycline every second day while I am kind of testing the waters of coming off abx. Currently I'm on the buhner bartonella/mycoplasma protocol and it is working perfectly for all bartonella and mycoplasma symptoms. In fact, I feel the best I have ever felt ever since getting sick. My energy level is back, I have my clear mind, I'm mostly free of pain as well. Also I got my bartonella symptoms down to nothing. I was a bit concerned back in August when I think this bartonella kind of relapsed on me. I feel pretty confident now that this herbal protocol will finish off bart. I actually plan on throwing out my months worth of rifampin. I thought I would save it to use against bartonella, but it was hard on my liver and it gave me lots of fatigue. Also the herbal protocol works much better, is more effective, and very easy to tolerate.

BUT, my Lyme symptoms have come back… But they are very very minor. I had a tiny mild ache in my upper neck (in spinal column), plus a minor ache in my jaw. Symptoms are very minor… Either a 1-2 on my Lyme symptom tracker. (I track every single symptom and give them a 0 (didn't experience that symptom at all this day), a 1 (barely noticed the symptom but it is there), to a 10 (that would be severe in the middle of being sick).

Soooo… I gave this Buhner Bart/Mycoplasma protocol a chance and what I learned is that it is working miraculously against bartonella, but the lyme symptoms come back a tiny bit. I will definitely keep taking these herbs to finish off bartonella though.

I am thinking of modifying my protocol and attempting light abx. I am going to attempt a German Doctors protocol with abx that is very light. It involves using plaquenil, and cycling a cell wall drug ( I will use amoxicillin since that is what I have) for 3-4 days, and then going 3-4 days of minocycline. To me these abx are pretty mild (when thinking about toxicity to the body that is). My other choice was pulse minocycline + biaxin+ tinidazole every second day. ( although with that one, I certainly acknowledge the riskier drug tinidazole which I was hoping I would be done with, although I will take it again to put Lyme out for good).

But I think I will go with the less toxic German Doctors protocol first to see if it can possibly reduce my Lyme symptoms. I have every single symptom quantified and classified… And Even though bartonella symptoms are at 0, lyme is still there, so I need to do something about that. Anyways, I will try for just 1 week to see how it goes. I would hate to let Lyme go untreated and slowly build back it's layers.

Well, that's my thoughts and progress report, and my next attempted protocol! What do you think?

Post Edited (LymePickle) : 10/2/2014 9:21:12 PM (GMT-6)

What do you guys think about adding buhners protocol when taking tindazole, zithromax, hhydrochloroquine and bactrim? I dont take these all together every day. bactrim and zithro 3 times a week, hydro everyday, and tindazole 3 days a week.

LP,
I was thinking of starting a symptom journal. How often do you evaluate your symptoms? Every day? Once a week?

I can see where it would be helpful to track your symptoms.

What I don't understand is, if Buhner's protocol for Bart is so effective for you, why not try his protocol for Lyme? Or have you done that already??? Hmmmm, my memory is still sleeping it seems....

Oh, okay! At least I did remember correctly that you haven't used it yet! LOL!

I have no idea how long a person would need to stay on the protocol - I stayed on mine for a full 12 months, but I was battling a 40+ year infection. With the progress you have had already with Lyme, I wouldn't think you would need to stay on it as long as someone who is just starting out - but we each have our own paths to travel.....

Whatever you do, I - as always- wish you the best of luck and will continue to follow your story on here!

Lyme Pickle, Andrew's dr. said ADP Protocol for life with strong probiotic

It's Oil of Oregano... that's why I was asking about it a couple weeks ago.

Andrew is NO WHERE NEAR ready... failing out 10th grade, no friends, wicked nasty and now, holistic healer/life coach not working. But, down the road.... think about it... dr. says it's really good.

I wouldn't be too fearful of infecting others through tears. I would've exposed a lot of people over the 3 years where I spent a lot of time at the care home my mom was in, especially the last 2 weeks of her life. The aides were all in tears too and hugging me a lot, so they would've been exposed several times. My cousin was there with me a lot too and she's fine. The Hospice workers are fine too. Then several of the people at her funeral could've been exposed, but they're all fine a year + later. There may be some risk of it, but I don't want people to get too worried about infecting others that way so that they quit all contact with others. Lymepickle, I'm not saying you didn't contract it that way. I dust don't want people to panic.

While I too would encourage anyone who is not in treatment to start treatments, my experience was opposite of Lyme Pickle's. I was infected for around 37 yrs when my husband and I got married - and of course we had 'relations'. I didn't get into effective treatment until 10 years after we were married, yet he has never shown any signs of the infection. But I also was infected & untreated while I was pregnant with both of my children - and they show no signs of it either.

I bet most of us believe the same as I do - I wouldn't wish this on my worst enemy -even though I have thought about it for those that deny it, but when I really think about it, I wouldn't even wish this on them - not really.

This just goes to show that - as Lyme Pickle said - it is a very complex infection. No one knows exactly how it can be passed between people or if it will - but the chance is there. Whole family members can be infected. The uncertainty will remain until we can get better testing and better understood treatments.

Tbrown - I'm sure Lymepickle will chime in, but in the meantime, you could go to Buhner's website. He has the protocol on the website...and where you can get the herbs.

I've cut and pasted the bartonella protocol. I'm not sure if everyone does all of the things mentioned below.

But, you want to start at low doses and ramp up slowly - one herb at a time. for example : the sida acuta. Start with lower than what's recommended below...and after a few days, add a little more, etc. Not everyone gets to the full dose...after that you can add the hawthorn, and so on.

I haven't done this protocol - just the lyme...so I'm hoping someone will chime in and offer you some suggestions.

I think the most effective of the ones listed are: sida acuta, japanese knotweed, houttuynia, and hawthorn
although, milk thistle is important for your liver health.

BARTONELLA
Research is ongoing, this is the most up to date protocol:
• Sida acuta tincture (from Woodland Essence or [email protected]) ¼ tsp 3x day for 30 days
• Hawthorn tincture, same
• Japanese knotweed, (tincture, same dose (from same sources as Sida acuta, above), or capsules from Green Dragon Botanicals 2 capsules 3x daily)
• EGCG 400mg +- daily
• Houttuynia (Yu Xing Cao – 1st Chinese Herbs, powder – use “LYME” code at checkout for 10% off) 1 tbl daily
• L-arginine 5000 mg daily in divided doses
• Milk Thistle seed, standardized, 1200 mg daily
All for 30 days.
PLEASE NOTE: If you have active herpes, chicken pox, or shingles DO NOT USE L-arginine. see also: bartonella

Hi Tbrown.  Sorry I missed your post. 

I am actually doing a combined protocol for BOTH mycoplasma and bartonella.  He has an even more updated protocol that is in his new book Healing Lyme Coinfections Mycoplasma/Bartonella. 

I ordered all the tinctures from woodlandessence, and they have an excellent product.  I ordered 2 of each in 4 oz bottles:

Greater Celandine

Red Root

Kudzu Root

Cordyceps

Sida Leaf (Sida Acuta)

Alchornea

Japanese Knotweed

Baikal Skullcap

Motherwort

Isatis

Houttuynia

Hawthorne

He also recommends the NAC and L-arginine.  I have been taking NAC but not L-arginine.  I also took all the herbs I mentioned above... And the symptoms are literally all gone!  It worked very well.  I'm actually surprised. 

I mix it in 90% water, 10% pomegranete juice, and take it 3 times daily.  I take about 2 dropper fulls of each herb for each serving I take. 

There is like no side effects either from these herbs and they seem to be working better than abx for bart. 

Do you think that would be ok to add to my mepron Biaxin and cryptolepis I'm already using or is that too much. Also wanted to try a-l complex

Yes he does explain why it's included! He goes into it very much in depth. I will have to read it over when I get home to give you an answer for kudzu.

I know why motherwort is used... For the brain infections. It protects and shields nerves, brain cells, etc from bacteria.

Also ever since I started these herbs I don't get the vibration sensations in my brain, or pulsing, or feeling of electricity flowing.. Or water flowing. It's a hard symptom to describe but I tried! Lol, anyways that symptom is gone now, I don't know if it was the motherwort or which herb it was, but that symptom is gone!