Long lasting Lyme disease

Hi James, welcome to the forum.

Were you initially treated for lyme disease? And did you see a Lyme Literate MD to treat?

I know that these bacteria bring the immune system down, so any opportunistic infection will arise. When the body has no defense, anything is possible.

Hi James,
Welcome to our community!
If you haven't yet, I would encourage you to read through our "New to Lyme? Start here!" thread as it's packed full of important information, symptom lists (as Lyme rarely travels alone), detoxing suggestions, and much more.

I suffered with bronchitis and respiratory tract infections twice a year, every year when I was infected and still smoking. The tar sticks to the lungs and if you have an allergy to something that you are being exposed to, like ragweed for me, it will cause an infection.

I was constantly being 'threatened' with a hospital stay if I didn't show improvements within three days by the time I finally went to a doctor. It all ended when I quit smoking and got effective treatment for my Lyme and other tick-borne infections.

As Marie has said, the amount of treatment that you have received is inadequate. You will need to see a doctor that has had training from ILADS in order to get effective treatments.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can start a new thread titled something like:"Looking for LLMD/LLND in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

You can email Stephanie at: [email protected] You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

​ You can also now email TBDA (Tick Borne Disease Alliance) at [email protected]​
​ and ask for LLMD referrals also.
​

As I said, you will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your Lyme journey.www.ilads.org/lyme/ILADS_Guidelines.pdf

Woho this information was important to me from ILADS:

"Magnesium deficiency is very often present and quite severe. Hyperreflexia, muscle twitches, myocardial irritability, poor stamina and recurrent tight muscle spasms are clues to this deficiency. Magnesium is predominantly an intracellular ion, so blood level testing is of little value. Oral preparations are acceptable for maintenance, but those with severe deficiencies need additional, parenteral dosing: 1 gram IV or IM at least once a week until neuromuscular irritability has cleared."


I am so weak and shaky now days.
Thanks!

Hi James,

I'm European . Can you please email me on [email protected]
I can maybe help you with names of drs.

Marie

Hi Roxie - I have been told by two different Dr.'s that magnesium glycinate is the best - most absorbable, and I read that it doesn't cause the laxative effect.

I take 400-600 mg of elemental magnesium per day - the elemental amount is the number you need to look at.

At one point I was told to take 800-1000 mg of elemental.

I agree with you Roxie! My doc has me taking Magnesium arginate, yet I have to still take Magnesium oxide to get my bowels regulated. My doc was surprised at that, but it is what it is!