Another + test after treatment, not sure where to go from here

Hi there,

This is my first post. My soon-to-be-wife has had lymes for at least 2 years. We live in Southern CA, and most doctors didn't even test her for it because no one thought she could have lymes. Despite fatigue, chronic pain, cognitive issues, sleep issues, an MRI that shows vasculitis, stomach issues and so much more, she was constantly misdiagnosed (lupus, fibro, etc). Anyway, she finally tested positive for lymes and did doxy for a few weeks. Then she did an 8-week course of alinia (a drug from HELL for her) and hyperbaric oxygen. She was re-tested, and is still + for lymes.

I don't know where to go from here. Does anyone know of LLMDs in the LA area? I hope to be able to convince her to continue finding a solution. Right now I think she's just happy that she feels better, even if she's still technically sick.

Also, is there a possibility that what was killed off by alinia/hyperbaric oxygen can reproduce again in her brain?

(clearly I have a lot of reading to do...)

Well lucky for you, CA is one of the few states that licenses alternative practitioners so you have quite a variety to choose from. I thought alinia was specifically for intestinal parasites, I haven't heard of it really being used for lyme but that doesn't mean that it isn't effective.

Given that she has had symptoms for that long it is likely that she could require additional treatment to get her back to optimal health. I would start a new thread "Looking for LLMD in So Cali.." I know we have a few members from here in that area and personal recommendations for LLMD's are best.

I would also recommend checking out this site. http://www.calnd.org/ , contacting them and asking specifically for an ND that specializes in Lyme - there are a few out there, not sure how many in California. I'm glad she is feeling better though, that is a really good sign.

And it is very sweet of you to be looking out for your soon to be wifey! She is one lucky lady!

~beth

I was severely incapacitated by pain, I did two hbot sessions and it made a big difference, although the effects weren't immediate. It was too expensive to do more. It's possible that you knocked out lyme, but still have a confection. I've read conflicting info on hbot and confections.