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Posted 11/3/2014 10:24 PM (GMT 0)
Okay - I know I've done more than my fair share of whining about my lack of improvement....wah wah wah!!

So, I'd like some objective opinion on this...I'll categorize my symptom improvement, my new symptoms, my worsening symptoms...and the symptoms that have not changed since abx treatment...
you be the judge...lol

Started treatment july 4 - doxy, added zithro july 24. Switched to ammox end of Aug, added biaxin to ammox end of Sept.

IMPROVEMENT/ABATED
- weight loss - gone, have gained back 4 lbs..and it's sticking (Sept)
- sleep - sleeping much better - (July)
- anxiety - almost gone - just now and then in the mornings - (July)
- lump in throat - much better - July/August
- phlegm in throat - much better - July/August
- balance - better (Sept) - will not be put in the drunk tank if pulled over by the Police. (can walk the line)
- head pulsing upon standing - (Sept) - only get this occasionally
- left shoulder blade - unsticking- can see it now (it was flat) - (Aug)
- lymph nodes - swell/sore - (hasn't happened since end of Sept)

SAME/NO CHANGE
- vibrations
- rib pain
- tailbone pain
- muscle weakness
- muscle pain
- joint pain
- back pain - mid and lower
- memory
- concentration
- nerve pain
- index finger numbness
- neck pain
- stiffness - all over
- pressure behind eyes

NEW
- shoulder pain (front and top) - both - (end July)
- foot pain ( Aug) and worse now in November
- finger pain (sept) and worse now in November

WORSE
- chills/shivers

I may have missed some. But, maybe it's not so bad? I've been treating for 4 months now.
So, what do you think? So, nothing really improved in October...could it be the biaxin is making me feel worse - ie. herx...or bringing out bart symptoms?

the symptoms I do have...I have pretty much every day - all day.

Oct. 1st I had some hours - almost symptom free.
Posted 11/3/2014 10:29 PM (GMT 0)
I'm thinking maybe I don't feel like there's been much progress...because the symptoms that haven't improved - are pain - and I have a lot of pain. So, the other ones aren't as noticeable, maybe? if that makes sense.
Posted 11/3/2014 10:54 PM (GMT 0)
Sounds like progress to me. I just started treating again and have developed fatigue, increasing insomnia, leg pain and weird muscle vibrations. So are we getting worse. I don't know? Maybe a biofilm gets broken down releasing tons of bacteria and symptoms kick back up for awhile. I think it takes a good 2 years to fully recover so I think you are on the right path. Debbie Gibson just posted an article saying she just had her first pain free month and she is in at least a year or two.
Posted 11/3/2014 10:58 PM (GMT 0)
Sounds like your making progress, I would be happy with those results. Well for the new shoulder pain, maybe since the other shoulder issue has resolved and it was pinned down might just be causing the new pain, the human body is weird.

Your peeling the layers off like an onion and maybe co-infections are starting to rear there ugly face such as rib pain and foot pain is Babs? No sure Babs or Bart?

My doctor said I would feel worse before I would feel better. Then he threw in Biaxin, after my first month boy did I feel bad for about a week or so but then I really started feeling good, day after day and that was in August for me.

I think the cold chills could also be the temperature change outside if your like me and don't want to run the furnace at 75 or 80 degrees. I used to set mine at 68 but bumped it to about 70-72 and still get those chills once in awhile.

I think you have improved a lot and you will be surprised at what the next few months will bring. Good luck dear
Posted 11/3/2014 11:05 PM (GMT 0)
It seems you are improving!! that is a good result after 4 months of treatment!

The shoulder/neck pain (like a collar) is due to herxing says my dr.

Keep on the good job!! you are on the good track!
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