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Tindamax: results? Pulse it or take everyday?

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Posted 11/11/2014 10:50 PM (GMT 0)
Hey ya'll. GOnna start taking this soon, pretty excited based on all the good things I've heard. WHat is everyone's experience with it? do you take it everyday or pulse it?
Posted 11/11/2014 11:00 PM (GMT 0)
How long have you had lyme for?
Posted 11/11/2014 11:11 PM (GMT 0)
Well it's ultimately upto you and your doctor what to do with this medicine.

But my opinion is that it is better pulsed. I think it is a bit harsher of a medication and so your body needs breaks to recover from it.

Reason why I am asking how long have you had the lyme. If you had it for a long time, you may want to do the usual dose of 500 mg twice daily. But if you haven't had it for very long it seems lower doses do work and would be less strain on your system.
Posted 11/11/2014 11:42 PM (GMT 0)
I pulsed it for three days in a row, then took a break the rest of the week.
Posted 11/12/2014 12:52 AM (GMT 0)
Can't remember exactly, but I believe we did 4 days on and 3 days off. Or the opposite! Definitely pulsed though. By the 3rd day of being on, started herxing pretty bad, so was always thankful for the days I was off of it.
Posted 11/12/2014 1:09 AM (GMT 0)
Oh haha. I should share my experience with it.

It is worked wonders when combined with minocycline! Really it has. It took me 6 weeks and then I felt fairly well again but i took it for an additional 6 weeks. I did 5 days on 2 days off which is too much in my opinion. But that is what the doctor suggested as I wanted something aggressive. The first 6 weeks is where I had all my gains in health. The second round of 6 weeks actually didn't make much of a difference to me. Just made me fatigued, tired, and I felt toxic after.

What I would do different... It take it until you are no longer herxing from it. And then consider reducing the dosage. That's what I would do if I knew then what I know now. 250 mg or 500 mg doses daily actually I believe are beneficial. That's just what i think now. : )
Posted 11/12/2014 2:18 AM (GMT 0)
Great information, thanks. I first got ill with lyme March 2013...felt good after a few weeks of doxy. Well my first symptoms showed november 2012, but they were very minor. I got bit then, though. Everything came back harder than before last October, been on abx ever since.
Posted 11/12/2014 3:49 AM (GMT 0)
I took it 3 days out of a month, then he wanted me to take it 5 or 7 but it got to me between the metallic taste and herxing I only lasted 3 days.
Posted 11/12/2014 5:28 PM (GMT 0)
Can't wait to take this drug. It's gonna be intense but I'm excited about its effectiveness
Posted 11/12/2014 5:39 PM (GMT 0)
I really like tindamax, at least compared to doxy. I was doing doxy one week, tindamax the next week, doxy, tindamax alternating 7 days. Now my updated protocol is tindamax daily with ceftin and planquil. No pulsing. Only on my second dose so we'll see how I feel after a few days! But I know I've had lyme for at least 2 - 3 years before diagnosis.

My doctor is big about not starting you off the bat with a ton of abx and I agree. I'm glad we worked our way up to it. But she is starting to be more aggressive since I'm not seeing much of a change
Posted 12/6/2014 9:32 AM (GMT 0)
I was bit June 2013. Took Doxy 2x100/day for 14 days (now I think it was not enough but that is the standard protocol doctors follow) and all was well apart form air hunger that I have all the time after the first abx treatment, some days more other days not at all. This August was hit by non-specific prostatitis, treated with abx IV, and then last month had brain fog, slow speech, some muscle twitch for 2 days, slight pain in fingers and toes but not all days, nothing major. The last 6 months I also had problems with misplacing letters when typing which I recently saw in a list of lyme symptoms.
So now I am on doxy 2x200 plus tinidazole 1x500 for 9 days , but after pill no. 8 of tini I felt tingling in my lower legs. I wanted to do 2 weeks of tini but I will stop, I am afraid of permanent nerve damage.
I do not feel major herxing, one day I had more frequent air hunger, other day - a bit of headache, brain fog is reduced to the point I am not sure I have one, speech too.
I plan to keep the doxy for at least 30 days but i will stop tini until the tingling disappears, at least a week, and then will start again.
that is my experience.
Posted 12/6/2014 6:33 PM (GMT 0)
I did clarithromycin plus amoxicillin four days a week, then tinidazole for three days a week, for three months. I often got really bad headaches and felt tired & groggy on the tinidazole days - were these herxes? If they were, then they are the only major herxes I've had on 12 months of various abx, so hopefully were a sign that the tinidazole was actually hitting something? In which case, maybe I should have continued on it? :-/. Hope it produces good results for you!
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