Possible Lyme Disease-Burning Skin

Hi Tiffteacup!
Welcome to our community! I'm so very sorry that this is even a possibility for you, but good for you for going on your own for testing.

Please realize that testing for these infections is not good, as they are only testing for 4 or 5 strains of the over 300 world wide, and they are only looking for the antibodies that your immune system 'should' be making. The problem with that is Lyme inhibits the immune system, so your body may not be producing enough antibodies to have a positive result on your test. It will also depend on what lab you are using. Igenex & Stoney Brook Labs are some of the most accurate labs for testing for tick-borne infections.

Your symptoms are certainly in line with Lyme symptoms - so I would encourage you to continue to look at it as a good possibility, and maybe even start some treatment to see if you get symptom relief, as one thing for certain -ask anyone with chronic Lyme and they will tell you not to take a change, get treatment immediately! And I'm one of those people.

If you haven't yet, please do read through our thread that sits at the top of the forum titled "New to Lyme? Start here!" as it's packed full of important information, symptom lists, detoxing suggestions and more.

Once you get your test results back, or if you wish to pursue treatment anyway, you will need to find a LLMD (Lyme Literate Medical Doctor), and we can help you with that as well.

For information on finding a Lyme Literate Medical Doctor(LLMD) in your area, you can start a new thread titled something like:"Looking for LLMD/LLND in the _______ area." Although you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

​You can send me an email by clicking on my screen name or the small blue envelop under my screen name. I may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and I will see how close I can get.​


You can email Stephanie at: [email protected] You can also go to: www.turnthecorner.org/ if you want to learn a little bit more about Lyme Disease.

You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link: www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74

​ You can also now email TBDA (Tick Borne Disease Alliance) at [email protected]​
​ and ask for LLMD referrals also.
​
You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your Lyme journey.www.ilads.org/lyme/ILADS_Guidelines.pdf

You are not alone here - you have a super support team in us! We will be here to help you along the way.

You are on the right track tiff teacup. Sorry you're on this journey of discovery but you're great to take things into your own hands. I've had some pretty strange skin responses to what I think was either mold or fungus. I am on a pretty intense yeast/fungal treatment that has been pretty successful and my skin no longer burns. I also had chronic sinusitis that was a fungal problem, which involved "facial pressure in eye, nose, and ears". I can provide more info if you like. I have also had weird lesions show up that my doc says are Bartonella-related (a co-infection of lyme). I also had the same "hot feeling: under my feet, which is common for Bartonella as well.

You might want to check out www.survivingmold.com as mold sensitivity is very often something lymees also deal with and can cause similar reactions to yours.

While you're waiting for test results, please visit the "new to lyme" thread at the top of the main page and I would also start looking for a lyme specialist —a "lyme literate MD" or LLMD in your area.

Let us know how things progress!

-p

I've not posted pictures on here before, but I believe it's fairly simple. Once the picture is loaded to a picture sharing site, then you just find the link and come here and go to "post reply" rather than use the 'quick reply' box. Once there, click on the "IMG" button, add the link to the picture sharing site, then click the "IMG button again.