Hallucinations

I am treating diagnosed Bartonella of late and the visual hallucinations and cranial numbness are hitting back pretty hard. I haven't seen many people discussing visual hallucinations specifically and if you also get Bart anxiety it does complicate the situation even more, but of late I am seeing movements where their is none in reality. An example would be I see a mouse clearly ran across the floor in front of me, but in reality nothing is there. Believe me I have checked. I also see what i would call "images" of people when I enter a room, which makes me do a double take and when my brain adjusts I realize nothing is there as well.

It is very bizarre. I chalk it up to brain inflammation and possibly ammonia on the brain from die off to keep me from freaking out and remind myself it is part of getting better. Lots of detoxing!

Can anyone relate???

Yes, me too. Thank god to finally understand what's going on, because before my dx last yr, with all the neuro stuff, out of body, out of reality stuff, with the seeing/hearing/feeling things, well, funny farm?

I see people, movement, small animals and bugs almost daily in my 120 yr old house. I hear people, music and other things all the time. I thought the house was haunted. Duh, maybe, but my l/co is off the chart so I'm banking on the internal scrambling of my brain. Ghosts welcome, though, as that would be a relief from some of this havoc going on inside/outside the body. I used to walk down our hallway and wouldn't feel my hips legs and feet. Like I was floating. Happens still, but now I get it. So it doesn't freak me out as much. I agree, it's got to be from brain inflammation and such. I often feel at times my brain is too big for my head, like pressure and some odd feelings. Hard to explain.

I would bring this stuff up to my therapist I was seeing at the time. She just said it was from my life traumas, and that I was 'splitting,' which is pretty amazing because she also chalked up my panic attacks, numbness in body parts, hot flashes/night sweats, anxiety, rages, etc all to the traumas. Now I certainly know better.

It can be a real challenge when someone gets a tbd. The jury is so misinformed to the truth of what is going on, that all of us just get trampled trying to get help, answers, support. Thank god for this forum. I've gotten most of my help, starting points for info from the amazing team here. We are all One. No doubt. Helps me keep going.

Just so calming to understand and finally realize that all of this stuff going on for so long inside of me is from something that came from outside of me, and it's something that I can do something about. Albeit time is my friend and I understand that this challenge to heal from the tbd will be a marathon, and not a sprint. I accept that fact, and embrace the NOW. It's all I've got, and this tbd really helped drive that fact home to me.

Hang in there, and self education is the key to healing, just my thoughts.
That's why this group is paramount to many of our victories.
May we all stand strong as ONE.

I've been on abx for nearly two weeks and the neuro herx can be pretty weird at times, all of the above plus some.

I just remind myself it's the price we pay to get better. A weird price, but necessary.

Jackie YES! Mice running across the floor. A person in the doorway out of the corner of your eye a cat sitting at the foot of the bed. I experienced this often at the height of my treatments while on IV and oral ABX. You're not crazy. This and a litany of other neurological tricks sounds visions and feelings and even dreams plagued me. I am entering my 17th month of treatment for Lyme and Babesia. I'm responding to tell you 1: you're not crazy; 2: stick with your treatment don't give up and 3: it will go away albeit it verrrrrry slowly. Good luck.

Yes, many people, including myself, have hallucinations or quasi-hallucinations.

I have the problem with seeing things out of the corner of my eye, and when I turn my head, there's nothing there.

I have a big problem with auditory hallucinations: If anything mechanical is running, like a fan, or the fridge., I think I here police sirens or the radio, or something of the sort; in other words, my mind transposes another sound onto the original sound.

Even my studded tires sound like police sirens to me.

I also have vivid visualizations, i.e., they're not "out there," but they're in my mind.

Margaret

Interesting stories everyone. How many people must get institutionalized with this before DRs realize what is going on? It must be a lot.

Yes I didn't mention the auditory ( music,ringing,talking,white noise) , smell ( something is burning,odd smells I have never smelled ), taste , etc. I can even relate to the "depersonalization" and topic that was posted.

I did believe but also good to hear it gets better with treatment. I can't tell you how many times I thought I was having a mental breakdown BEFORE diagnoses and I am hoping this discussion is helpful to others yet diagnosed or struggling as I haven't seen it discussed much on the board. I think anyone who has unexplained hallucinations rightfully questions their sanity.

I will admit at times this topic is a bit uncomfortable for the general public to discuss. I had to tread on thin ice with my regular DR talking about this without them wanting me to be committed, which is sad in some ways, but I listened to my body and knew something was physically wrong and my Lyme DR put it all together.

Highest regards to everyone battling in treatment.