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Lymepickle??

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Posted 11/28/2014 8:10 PM (GMT 0)
Don't know if you're really busy...and not on the forum lately...or are reading, but not posting.

Wondering how you are doing lately?
Posted 11/28/2014 10:09 PM (GMT 0)
You beat me to it—was just getting ready to ask about the fella. Hope he's on vacay…

-p
Posted 11/29/2014 1:54 AM (GMT 0)
Girlie... Thanks for thinking about me! And Mister Mike and Piroutte too!

To be honest I am mostly recovered now... Maybe around 95%??? But of course if varies up or down a few percent day by day, even symptom free on some moments. My last remaining symptoms are all deep tissue inflammation but is mostly minor now in intensity... Either joint areas or tendons, I also occasionally get it in my upper back spinal area, and the only way to get rid of the symptoms is with antibiotics. So... Ya I can get to symptom free when I take Abx. I have been pulsing and taking a few breaks here and there with the abx to give my digestive tract a break. So unfortunately I haven't got every last germ yet! Also as for bartonella, it isn't that bad at all anymore, it only occasionally gives me 1 symptom and that is occasional foot pain. I don't know if it's bart or a lymphatic drainage issue in my feet... But that only happens if I don't take the bartonella herbs so it is probably the bart.

I have just been going to work every day and resuming being productive there again. So getting good sleep, exercising, etc has been important. I got an exam to write soon as well so I am studying for that.

Also I got the rife machine and I think it actually works?! I tried a dozen different times, and I had the most intense herx reaction my first experiment and my whole spine herxed and my sternum. That lasted like a few minutes and I felt a panic. I have had sessions where I would have odd reactions in my body here and there... My tooth hurt one time and I sometimes get tendon pains or muscle spasms... Also had sessions where I had no reaction at all. So it varies... And sometimes I finish and am completely
Symptom free, other times I am still achy so I don't really know yet for sure how to use it properly... The rife I got is apparently the best one for lyme (GB4000) and the new models have frequencies down to the hundredth of a herz. But I am unsure if it could cure me 100%... Some people have got to 100% with rife alone but I don't want to take any chances and not use the Abx. Maybe rife in conjunction with the antibiotics is what I need... I'm also taking Ceftin now and able to tolerate it! It seems to be quite effective. And I can get to no symptoms other than stomach and intestinal inflammation! I am going to get some suggestions from both my LLMD and LLND on various pulsing methods... I feel I can't take it every day as it is too hard on the digestive tract.

I kind of took a step back. I have read through the forum a few times the past few weeks but that is all. I got a couple e-mail messages saying my tone is too much like a doctor and it could cause more harm than good for members. So I took a step back from posting. If I can ever get to 100% I will for sure post my success story! But to me 95% is not completely healed... I still got deep tissue bugs left which is my main issue! Like a kind of minor case of fibromyalgia but it's lyme as the symptoms respond to antibiotics. So I'm still working away at it!
Posted 11/29/2014 3:39 AM (GMT 0)
I don't think your tone is too much like a doctors! I think you have tons of great info and you are very well informed. I think you help a lot of people with your info. I think everyone on forums should take others' info with a grain of salt- none of us are doctors or trying to tell others what to do. We are just sharing our own experiences.
Anyone who reads others' experiences and info doesn't have to then go out and just do that untested. It is just a learning process and in best case everyone should have their own good doctor helping them. Or at least be able to do their own research, so in other words I think your info is good and people can agree or not agree with it but people shouldn't just do something based on someone else's forum post, and I don't think you tell others what to do, I think you just share what you have personally learned.

Post Edited (Katebirch) : 11/28/2014 8:42:03 PM (GMT-7)

Posted 11/29/2014 4:15 AM (GMT 0)
okay - Lymepickle - if you read this - can you play Dr. for me one more time...lol.

I'm now on Ceftin and biaxin. Taking the GSE a couple times a week.

I am also on JK, CC (Buhner)...and have just received my order of Sida acuta. Dr. C. also told me to use cryptolepis even though I most likely don't have babs...he says it's good for the others, too.

In a few weeks, if I don't feel a significant change...I am thinking to do rifampin - pulse it maybe one week on, one week off.
What do you think of that?

By the way...I wasn't asking about you because I wanted to ask you that question...I really was just wondering how you were/are doing...
and sounds like you're sooo close...that's great!
Posted 11/29/2014 5:20 PM (GMT 0)
I agree, I always get a lot out of your posts lymepickle and am really impressed by your vigilance when it comes to fighting these bugs.
I have a question for you as well. How long did you stay on Buhner's Bart formula (or maybe you're still on it)? I'm about to hit my one month mark but still feel symptomatic, mostly throat issues. Thanks and glad to hear you are so close to being well!
Posted 11/29/2014 11:21 PM (GMT 0)
Bumping so LP might see it later.
Posted 11/30/2014 8:05 PM (GMT 0)
Thanks guys! Actually all I was doing was sharing my experiences, what I have read and researched and know.

Girlie- I think rifampin is not a good antibiotic to pulse for Bartonella as many patients and doctors have experienced it becoming resistant to rifampin. Actually Tuberculosis and other bacteria have a similar trend. Rifampin needs to be taken continuously. Many of the people who have pulsed it over long times noticed bacteria becoming resistant to it. You can talk to Dr.C and maybe there is something you can do like take a protein synthesis inhibitor on the off days? You will have to treat bart on off days though with something for sure. Lyme can be treated with pulsed antibiotics, but it seems bart requires continuous treatment.

Also I just read something yesterday... Ceftin might be useful for the cyst form of lyme! I was surprised but I read it on a doctors blog. I would prefer taking ceftin for sure over metronidazole or tinidazole!
Are you doing 500 mg twice daily dosing or 1000 mg twice daily? This makes sense as lots of people were able to get remission from Ceftin... Dr.B too! It was in the data analyzed by the huge study released in July.

KitKate, I think you have to just keep with it. For my experience, I found if I missed a bartonella drink, or stopped my bart treatments, the symptoms would come back in a few days to a few weeks, and if I had the bart drink (or was taking abx) the symptoms would clear up pretty quickly. For me bartonella responds to my medications very fast and in no longer than a day or so it is back under control. That is just my experience with my own bartonella that is.
Posted 11/30/2014 8:29 PM (GMT 0)
Thanks for the reminder of Rifampin - no pulsing - I think I read that. I was confusing it with Flagyl for cysts - I'm pretty sure it can be pulsed.

I am on 500 mg twice daily - is the standard dose usually 1000 x 2.

Bartonella drink? Are you talking about sida and houyytinia (sp?) tinctures?
Posted 12/1/2014 1:02 AM (GMT 0)
LymePickle I would take with a grain of salt what others emailed you or said on here. You are very knowledgeable and have a ton of information and some of us like your opinion. Don't let that keep you away.

I am so glad you are close to feeling 100%, glad you caught it as fast as you did, since it seems like it took a long time to get rid of it all. There is a light at the end of the tunnel.
Posted 12/1/2014 1:07 AM (GMT 0)
Hi Lymepickle,

Thank you for ALL your help. On and off the forum. You truly are a caring individual who wants to help people. I never thought your tone was that of a doctor. Most doctors I know seem like they are gatekeepers to my health. You on the other hand are very knowledgeable and open minded, and offer help with all the information you patiently researched! Thanks for all your time.


Ella
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