In need of some support and advice!

Soo, here it goes... I am new to the forum, here is my story: I am 25 yr old femalefrom Mt. Pleasant, MI... around July 22 I went to coldwater lake.. after that i had a small rash not a bullseye (could of been completely unrelated to lyme)

Time line:

Aug 10: went to urgent care scratchy throat, swollen glands, got prescribed zithromax

Aug. 13: went back did cbc because i freaked out about my glands, everything normal

Aug. 15: woke up in a sweat, thought it was hormone related


Sep. 1st: got really sick, aching muscles, prescribed zithro again

Sep. 20Th: sweating, occasional night sweats

**** increase sensitivity to allergies, rashy on chest, hot flashes, low grade fevers, night sweats... all happens every 4 weeks, mostly around my menstrual cycle.

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Oct. 23Rd: finally, after seeing my new family Dr. Twice and said it was anxiety... I contacted my other Dr. That is a family friend, she ordered tests everything was normal besides LYME, although both lyme test were neg. I had a lyme ab of 1.40 and reactive bands 23 igm and 41igg, is it possible for anything to cross react with 23? Ive read it is lyme specific?


So my Dr. Prescribed 3 weeks worth of zithro, felt better at first, then horrible... then last Friday i went to ER, painful neck, headache, numb face... did xrays and ct scan, told me i have sporadic torticollis, felt great Saturday, sunday went back to er numbness in arm and leg... ct scan shows nerve compression on c3-4, theres no doubt i have a pinched nerve.

The dr. At er on friday finally prescribed doxy 2 100mg 2 xs a day for 10 days, so i started taking it the sunday i went back to er, where they prescribed prednizone for inflammation... i had muscle spasms all over my body. (Wondering if prednizone can cause this) I also was just ending my zithromax treatment. Also started zoloft... i have to have an mri this wed for the pinched nerves, but i am so scared they are going to tell me i have als or something, All of my symptoms change and are inconsistant. I have a three year old and really need to get better :(i dont know if i am herxing...or if i even have lyme... i have been referred to a neurologist that is going to tell me theres no wayi have lyme... i guess any thoughts... advice... especially on my lyme test.... anyone have lyme and have only reacted to igm 23 and 41igg? Thoughts and support are great

Tbohl, I'm sorry you are going through so much! It's pretty amazing you can even get on here and post with all that crazy stuff you're dealing with. Good for you for challenging the diagnoses and trying to really figure all this out.

You're not crazy, those results do indicate Lyme to this humble layperson. (Please note we are just a great network of support on here and not "experts" so we try to be very balanced in our feedback to each other.) Also, please know that lots of us were scared it was MS or ALS before we found out it was Lyme. I'm not sure what your tests will come back like--I just want to you to know it is normal to be scared and to jump ahead to those conclusions.

I had those exact same bands on my first test through Stony Brook Labs (except both on IgM to make my result positive according to the CDC, thankfully). A month later I received much more thorough results from IGeneX Lab. (You can see the details in my signature below.)

You seem to have some good basic understanding of what you may be up against based on your post; so, just in case you haven't already, be sure to read the first post at the top of this forum titled "New to Lyme? Start here!" for tons of useful info. We will all encourage you to find an LLMD right away by starting a new thread titled "Seeking LLMD in Mt. Pleasant, MI" or whatever other major city is near you.

Good luck, and keep us posted!

Maui

Welcome tbohi, Yup I had bands 23 and 41+, bulls eye rash and definitely have lyme and co-infections. May I suggest you find a lyme literate MD or ND right away. The sooner you get into serious treatment the better your chances of getting it under control quickly. I wouldn't waste time having other Dr's treat your lyme, since it may take more than doxy. Best of luck!

Thank you guys so much! Unfortunately im still having some weird muscle twitching but I will get better!