Regarding me losing faith in the llmd

Utahgal,
At some point we could probably email-- but for now just wanted to follow up on a previous thing. Regarding me losing faith in the llmd.

I wanted you to know I still think they are a great llmd practice. I think they know a ton about it and are very thorough. They got me from a very bad place to a much better place. they just have not (yet) been able to get me the final part, and to keep me there. SO that is my frustration.

But I think that is common with healing lyme and that often there are multiple steps involved and multiple practitioners.

I wanted to let you know that I still think they are good, I will still continue to see him, and I still think you are in great hands with them. IT is just that I didn't get as better as I wanted to, relapsed, and am still working on it. But I am much better than I was at the start of treatment. So I do recommend you hang in there with them- I think they know as much as many about lyme. It is just that healing lyme all the way is somewhat of a mystery.

hi-- yeah, I did 6 or 7 months of abx, got to maybe 85% better. Within 2 weeks of stopping the anxiety came back. And then fatigue. Didn't feel too sick, but the anxiety was back- the specific lyme anxiety. I stayed off abx for 4 weeks and by the 4th week the anxiety accelerated a lot- ugh. So My dr had me go back on abx. I first went on them at low dose for a month, plus my llmd's hebs which are somewhat mild doses. I still had anxiety ( a little less) and massive fatigue and ear issues. So a week ago at my phone consult he said go back on full dose.

Meanwhile a week ago I started the herbal protocol that traveler did ( slight variation but the same basis). I am now hoping this herbal protocol can be my salvation. I am staying on the abx for 1-2 months to knock it back but soon want to try all herbals.

I don't know what will happen. I am also seeking out people IRL who have healed hteir lyme with herbals (or with anyting) and have two appointments this week with people who did, so am hoping for some inspiration.
So the abx knocked back th elyme but it came right back.


What about you Chapelle? Did your abx work and keep you lyme away? Can you remind me what protocol you did? I am still searching!

OK, gosh I can imagine how frustrated you must feel. Anxiety was the very first symptom I had - it was aweful, so I know what you were going through. As a pharmacist, I completely agree with my dr, and feel that too many people on here are on so many meds that it becomes too toxic. I sincerely hope it all works out for you - I will try to check in on here more often. I am now counting 3 months off antibiotics, and I am not even on herbs (even though I should be, but there is no info on their safety in pregnant women, so I have to stay away from them for now). Good luck on the herbal protocol, Ill bet it will do wonders for you!!