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Posted 1/16/2015 5:58 PM (GMT 0)
Why do I vibrate??

When ever I lay down and my body is totally calm, soon I as move any body part, I feel different parts vibrating. I've even felt it my head at times. For the longest time I thought it was my imagination, till yesterday. I had a lot of nerve pain in my left arm. I tried to take a nap, so I was still for a long while. As soon as I moved it started in my left arm. I felt my arm with my other hand and sure enough it was physically vibrating.

Does anyone else vibrate, or am I losing my marbles? Now I have the Beach Boys stuck in my head. Good Vibrations.

How is this possible??
Posted 1/16/2015 6:07 PM (GMT 0)
You r not losing your marbles for sure. I saw my son's face vibrating one day while sleeping. Maybe someone can tell us the cause because I sure didn't get any answers from the regular drs!

Hang in there.
Posted 1/16/2015 6:25 PM (GMT 0)
One of my first symptoms of Lyme disease and co's was the vibrations in my body.

They are nervous system issues. I don't know if it's just an irritated nervous system (from the disease), or damage to the myelin (sp?) sheath.

In addition to the vibrations, I also have shivers - although they're worse when I'm cold, I also get them when I'm not cold. They're like the shivers you get when you see something scary on a movie...or when you hear a really good song (goosebumps)...those shivers. (But I don't get the goosebumps). They are definitely from the nervous system being affected. They are happening to me periodically throughout the day.

Do you suspect or know you have bartonella?
I have been treating for lyme, and those are still with me. Sometimes the internal vibrations are a bit different, though, sometimes they are like a truck motor inside me ( a different frequency )....

Describing it to someone...makes me feel like I'm a nutbar. I used to say I have vibrations, but they're not "good vibrations"..lol
Posted 1/16/2015 6:34 PM (GMT 0)
I had some internal vibrations throughout my body. They tended to migrate over time. First in was in left hand , then both hands, then right hand, then my upper back area and during a weird herx I felt it in my temples on my head. It's hard describing to people because people understand "tingling" but not "vibrations."

The vibrations have dissipated but I noticed that when I'm at the acupuncturist, there are times where I feels like my whole body is vibrating and shaking. I tried not to think about it took much because I try to relax and mediate --sort of.

When I talked to my LLMDs about it they always say its a common symptom for Lyme patients. So you're not alone.
Posted 1/16/2015 6:36 PM (GMT 0)
Hi Girlie, yes I have Bart and Babs too. I do get the goosebumps in various parts of my body. They don't bother too much, I just ignore them. The only ones I don't care for are the when they hit my scalp. It's a creepy feeling! I've only had the shivers once, while I was trying to go to sleep. I had my husband cuddle me and it helped. I think it was the pressure or stimulation of touch on my skin. What ever it was, it helped.

My vibrations feel like there's a cell phone on vibrate inside me.

I haven't told anyone about the vibrations. Too afraid nice young men in clean white suits will take me away.
Posted 1/16/2015 6:38 PM (GMT 0)
Girlie:

What else do you have besides Lyme? I can't get an appt with my former llmd for my son for 2 months and I only know he has Lyme because he got the rash in fall 2013. Can any coinfection cause this? He also had 4 grand mal seizures since sept 2014. Seizures stopped since he is on abx for a sinus infection, so I find that relevant but I'm given the run around from the drs
Posted 1/16/2015 6:44 PM (GMT 0)
Simela1, did you tell your LLMD your son is having seizures? Maybe they can get him in sooner? Mainstream drs don't have a clue about Lyme. My PCP wouldn't even give me abx when the test came back positive. She only referred me to a LLMD.
Posted 1/16/2015 6:49 PM (GMT 0)
It is suspected that I have the co-infection - Bartonella. Bartonella is known to attack the nervous system.

I have recently added Buhner's herbs for Bart to my Lyme treatment protocol.

When I talk to my LLND in a month, we will discuss if I am going to add Rifampin to my protocol for bart.

I think that my vibrations have lessoned somewhat, but my shivers have increased. Oh, the joys of this nasty disease.

Mom of 2 - I do tell my friends about the vibrations...but it's a hard one to describe...I say it feels like my finger is plugged into a light socket.
When we were 'fighting' with a Psychiatrist over prescribing my elderly father psych meds....my hubby used to joke and say I should remain on the good side of the psych doc....or he may send over the men in the white coats to take me to the psych ward.

Before my diagnosis...I would sometimes feel like I was losing my mind - partly because of the vibrations in my body...and partly from the anxiety and 'crazy' feelings I was having from lyme.

It's amazing we can keep pushing on....Thank God for this forum.

Simela - I agree with Mom of 2 - see if they can see your son a.s.a.p. - get on a cancellation list if possible. Maybe if they know he's having seizures...they will take him right away?
Posted 1/16/2015 7:04 PM (GMT 0)
Thank u guys. Yes they will take him in sooner if they get a cancellation. We r on a waiting list. I can't do much about it in the mean time except look for another dr. The lady is v nice and she remembered me. I sent in the paperwork. Now I have to wait for them to call me back for an appointment
Posted 1/16/2015 11:34 PM (GMT 0)
Dr office called me back and said the first avail appointment is march 9th. I don't know! I'll call on Monday and see if anyone can see him sooner. I wish this was on me again than on him!
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