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Freaked out about Biaxin and Long QT Syndrome

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Posted 1/25/2015 6:22 AM (GMT 0)
It is rare (the acquired one), but still...I'm starting to get worried about it.
You can get it by taking Biaxin and Zithromax. A couple risk factors are being a woman, and taking higher doses.
Interesting that I have felt "toxic" when taking biaxin and Zithro. I think my rashes were caused by both, as well.
It's freaking me out.
I have dropped it to half dose, as I am taking full dose Ceftin, along with lyme and bart herbs.

In a couple weeks, I will discuss with my Dr. to discontinue...and go with Doxy and Ceftin, and then after that do Doxy and Rifampin.

Are my concerns about biaxin unfounded? I read that you should be tested while on it with an ECG to make sure you haven't acquired the Long QT.
I haven't heard of anyone getting regular ECG's to check for that.

Maybe I'm just a worry wart?
Posted 1/25/2015 6:14 PM (GMT 0)
Have you seen evidence that you have LQT? From the little I've read about it, there are no symptoms.

I would be concerned about the rashes that you mention as well.
Posted 1/25/2015 6:36 PM (GMT 0)
Girlie—
Here is some info I found when I was dx with LQT a couple wks ago. I, too, am very nervous. My LLMD took me off Ketoconazole immediately and a few posters here told me it was serious and I needed to find a cardiologist, which I am doing. Another poster (sorry—cannot remember who—maybe Razzle) and I emailed and he was thinking it was some of the other supplements I was taking.

I did query my family and those who bothered to answer my email are not aware of LQT in the family but lots of other heart issues. I'm still looking for ways to analyze my DNA for any genetic predisposition.

Hope this helps:

/www.crediblemeds.org

www.qtsyndrome.ch/drugs.html

flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=064297;p=0

www.jpeds.com/article/S0022-3476(05)01125-X/abstract

www.healingwell.com/community/default.aspx?f=30&m=3299929

-p
Posted 1/25/2015 6:48 PM (GMT 0)
No, Trav I haven't seen evidence of it. But, what's interesting - while poking around to find info, I read that symptoms of heart issues can be fatigue, sweating - well how many Lyme infected people have those?
And, you're right - there often isn't symptoms. I do have the hot flashes and sweats - but we've attributed those to either my infection or adrenals.

There wasn't heart disease in my family - so I'm only concerned about the acquired one - which could be a result of Biaxin or zithro.

I'm just thinking of playing it safe - and stopping the biaxin...as I have been on it for almost 4 months now.
Afterall, it's not the only antibiotic for lyme/bart, right? Why take the chance?

I know there are side effects and risks with all the antibiotics...but I don't want the one that messes with my heart.
Posted 1/25/2015 8:15 PM (GMT 0)
Oh, I don't blame you a bit!! Heart issues scare the pants of me!! I've been very, very fortunate to not have had anything more serious that heart palps!! I was hoping that you would come back and say that you just are hoping to play it safe!!!

And you're right, it's not the only abx for treating these infections!!
Posted 1/25/2015 8:27 PM (GMT 0)
And - I've been on it for almost 4 months - even though I have taken on average two day breaks every 7-10 days.
But, that shouldn't matter - as I do see a lot of protocols include pulsing.

4 months = fair trial, time to move on?

I think so.
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