My daughter has lyme. She is 20. It started 3 years ago with a break for a year and relapse 9 months ago. She spends most of her time in bed. I have difficulties, many times about
how to suport her.
Examples: she cant eat sugar or gluten. She feels nausea most of the time so she doesnt really want to eat and what she wants to eat is usually not very good for her. Every meal goes something like this:
I need to eat
What would you like
Nothing
But you have to eat something
But I dont want anything
I can make you, this or this or this...
Nothing.
Then I will gomand let me know.
10 minuts later she text me and tells me what she wants....
Another example: sometimes, a copuple of days at a time, she is mad. She doesnt want anybody to talk to her and when the brothers and sisters go to her room she kicks them out. Do I get upset with her? Domwe leave her alone?
Or, i go to wake her up in the morning and she says: leave me alone, I have no reason to get up
My question is: how much do I push her ? If she wants to be alone 2 days in a row, do I leave her? Do I ask her everytime the 10 differnt kinds of food I can make her? Do I just litterally get her out of bed?
She doesn't want to join any suport group and I dont know how to motivate her.
Thanks