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Is there a way to be able to select an LLMD based on his background eg: neurologist?

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Lyme Disease
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Posted 1/31/2015 8:26 AM (GMT 0)
I think the most fitted dr for my son would be a neurologist LLMD. He came from school yesterday and his hand was moving back and forward involuntarily from his wrist. I am concerned that a regular LLMD that is a family dr wouldn't know how to treat this aggressively and I would like to go asap to a neuro LLMD. If one is not immediately available I could still start with my LLMD and then switch to a neuro LLMD. He has way too many neuro problems and it is getting me worried. This is not normal for a 10 year old.

Thank you!
Posted 1/31/2015 9:03 AM (GMT 0)
Why isn't he on antibiotics for Lyme and possible coinfextions. Did they do further blood tests to see if he stl is infected
Posted 1/31/2015 5:19 PM (GMT 0)
I suggest you get him in to see your LLMD asap, without delay, and get abx going. You have the relationship and rapport with your doc to accomplish this.

Then, respectfully ask your doc if he/she has a colleague who specializes in pediatric lyme. While the neuro symptoms are scary to see they are not uncommon at all, not necessarily requiring a neurologist. Lyme is less a nervous system disease and more a whole-body disease with neuro effects, so in this case going to a neuro specialist could be counterproductive.
Posted 1/31/2015 5:25 PM (GMT 0)
I just sent you an email that might help.

Of course you know that you can do a post "Looking for LL Neuro Near ______."

I hope you find some good doctors to help your kids! See if you can get someone to order the IGENEX tests. Keep trying! :)
Posted 1/31/2015 5:59 PM (GMT 0)
Why not? We select doctors for their specialties all the time.
Posted 1/31/2015 6:10 PM (GMT 0)
In my experience, (15 yr RN in IM), docs tend to see the patient through whatever lens their specialty happens to wear.

I go to an ID doc, he sees I don't have a fever, rash, or scary signs today and sends me away. I see a hematologist, he finds out I don't have leukemia and sends me on my way with no further eval for a high wbc. I see a cardio, he wants to give me a beta blocker but brushes off the possibility of an infectious agent causing cardiac conduction system issues. On and on; this is an old story for us.

Now, if you're lucky enough to find (and can afford) a neurologist who specializes in treating pediatric Lyme pts according to ILADS guidelines, that would be quite a needle to find in a mighty large haystack! But I assure you, a conventional peds neuro would not be the one to bring a child with Lyme to. That's my view, based on my knowledge, training, and experience.
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