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What does the future hold for me as far as treatment after this experience?

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Lyme Disease
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Posted 2/23/2015 9:21 PM (GMT 0)
I've really been digging deep and trying to learn what I can from the last 6 months since I started treatment. It seems like I had some OK times, some really bad times, and some really good times. Just about a month ago I thought I was doing really really good! And right now I feel like I'm knocking on deaths door.

I started out in treatment already in the middle of a really bad.... flare? Or whatever, I was very sick anyway. I was given very low doses of antibiotics and a plethora of supplements to support the rest of the process. I had regular ups and downs. I had a couple really really good times where I thought I had accomplished some serious healing. And then I'd have those times where I questioned what I was putting in my body, and wondering if this was the right thing to do.

This past week was the worst week of my life. No exaggeration. I have never felt so sick and so close to death. I'd like to think that I'm tough, I try really hard not to complain or freak out about every little symptom. I tell myself constantly that it's only temporary and that I'm strong enough to overcome this. This week LEVELED me. I was in a situation where being strong was no longer a viable option. It simply didn't matter anymore.

I feel like whatever just happened to me did some serious damage. I still have no strength in my arms and legs. And that's really scary. I have maybe 20% the strength I did a week before this. It's strange, really strange. I go to pick something up like my cup of water and it feels really heavy and my arm starts shaking. I had an episode where all of the muscles in my body suddenly turned to concrete and I was shaking really fast. I had no control over my body. My eyes were pointed in a direction that I didn't "put" them in. I was biting my own tongue and I couldn't let go. When that ended I just cried! I don't know if it's a seizure or me almost passing out. I don't know if it's dangerous and I don't know if it's going to happen again. You know when you get the shivers? I get something like that but it's much more pronounced and it makes it hard to talk and move. My movements are more robotic than fluid during those times...

I'm getting off track, sorry. I was hoping that you guys could enlighten me. I want to know what other options are out there. I'd like to know who out there responded like this to treatment. I'd like to know where I should start. I need some good research material. I really really need help. I don't know what it's going to take to get me better, but I have to start somewhere. I don't know if I'm comfortable starting up the treatment protocol I was just on. Unless it is only a detox issue and I can get that sorted out. I'm open to criticism and opinions.

Any and all ideas are welcome, thank you in advance :)
Posted 2/23/2015 10:46 PM (GMT 0)
One thing I wondered was if you you got bit by something when you were working outside that added to your infection. We've seen some mosquitoes already. I don't think it's real likely and wouldn't necessarily cause all the problems you've been having, so just a thought.

Has your doc ever had you tested for allergies to anything you're taking?

I'd suggest you keep a detailed diary of things you take and eat to see if you are reacting to anything. Not an easy task, but it might offer some clues to some of your problems.

I do hope your doctor will have you checked to see what's causing your hands to turn black. That shouldn't wait.

I have been having some weak spells from my body fighting off the bug my hubby has. My arms and legs just don't want to move a lot. I did a little shovel work outside today and the shovel started feeling heavier and heavier, so I quit and probably won't do any more today. It's disrupting my sleep too, which doesn't help. So some of your weakness could be a virus. I think if my Lyme infection was a lot worse, it would impact me more. Like I said before, it's a tough bug. My hubby has had it for 11 days now. Do you have any coughing or nasal discharge?

There have been some cases of a meningitis type of infection at the U of O, not that I think you have that or if it's very likely in your area, but it's good to be aware of it if you aren't already.

Sorry, not great ideas, but that's what my sleepy head thought of.
Posted 2/23/2015 11:35 PM (GMT 0)
I'm am so sorry you are going through this. Sounds like a seizure. They can take a lot out of you. My daughter went through that stage but luckily her symptoms switch and those have went away. You could of had a bad herx and your body didn't know how to handle it. I'm not very good at answers as I have a thousand questions myself. But one thing I'm hopeful for is that this symptom will pass for you too. Just don't stop your treatment. But if makes you feel bad, then you may have to take less and go slower. Hope you get your strength back real soon. *hugs*
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