One leg is getting skinnier than the other

you are probably not absorbing the nutrients thru your stomach. Do you take L-glutamine? It is for muscle repair and also helps to rebuild the stomach. It is a great supplement that has really helped me rebuild my stomach. Also, the more stuff you can drink, protein drinks and juicing veggies the better. That kind of stuff is much easier for you to digest and get the nutrients from.

Good luck girl. When do you go to your doctor again?

IHL- as dancingbear recommended, you are probably not absorbing nutrients.  That is one possibility. The other possibility is your body could be under a constant "fight or flight stage" all the time, causing your sympathetic nervous system to be on high alert all the time, that either you not digesting properly due to inflammation and stress, lacking proper enzymes, lack of sleep (which definitely contrbutes to malabsorption) or it could be Bb attacking your gut.  Have you had GI issues in the past?  I have had a chronically inflammed gut for as long as I can recall, and just within the last 6 months I've started rebuilding it.  I can list out a whole wonderful protocol for you to start using, but it may be too much at once.  Are you on any good probiotics?  L-Glutamine is also essential, as it helps restore and repair the gut lining so it is not permeable (leaky gut).  There are a few key supplements to take with an inflammed gut, probiotics, L-glutamine, DGL, marshmellow root, carpylic acid, digestive enzymes.  I've also found homemmade bone broth to be extremely effective in healing the gut, probably the most healing next to probiotics.  While protein shakes and juices can be easier to digest, they can also be more harmful than beneficial, if the gut isn't strong enough to absorb them, especially raw greens/veggies, as these are dense in fiber and hard to break down. 

Email me if you want to get a better understanding of the protocol I was on.

I just made more broth I do a lot of that. I take good probiotics, dgl, enzymes, the l glutamine is in a couple of my other supplements actually.

I had an X ray a few months ago that showed severe constipation even though I go multiple times a day. Seems like a lot of my problems go back to that as the source of mayhem.

I've been doing all kinds of different laxative things here and there. I feel cleared out but I was wrong before. Ugh.

you are doing good with all of the stuff listed. I think you should add the L-glutamine powder though. It takes a while to rebuild the stomach. You said you feel more cleared out, that is good. Keep it up, you are getting there. Traveler says that there is a lot of healing the body does before we can feel the difference.

Hang in there!

IHL- not to sound gross but how is your stool?  And how often/how many times a day do you to go the bathroom?

Have you been tested for parasites?

I have not been tested for parasites. I ended up having diarrhea today, and it looked very red. I'm thinking it's just staining from the Rifampin. It seems like if I don't enough food when I take my Plaquenil thats what sets it off.

As always Girlie I find your replies to me very comforting. I've been up and down with my weight since I started puberty. I think I've likely been sick for more than my 8 year estimate. The more I think about it the more I remember about growing up sick all the time with really weird stuff. I was alot tougher as a kid than I am as an adult! Once I started needed surgeries all the time and my capabilities were getting worse and worse I turned into this huge baby that I am now.

I can't believe I didn't notice this before. I should probably check the rest of my body so I can tell my doctor about it when I see him but I'm too tired. And who cares anyway right? What's the use of worrying about all of these symptoms if I need to kill the infections and support the rest of my body to make them go away?

It's easy to get caught up worrying about symptoms. It's hard to live like this. My brain is too broken to really deal with it. I think that's what makes me freak out, I just can't think straight. Everything is muddled and scattered and foggy..

It's my entire leg. My thigh is actually more uneven than my calves. My right side is the side that I have more pain in. So maybe that side is bigger and the left side is normal. I mean, all of me is smaller right now. I'm too much of a mess to even think straight.

UGH! I WANT MY BRAIN BACK! I feel like whatever is happening to me is making me dumb. I'm losing my mental.... whatever. I'm just not as sharp as I once was. Maybe it's all the meds, maybe it's the infection, maybe the inflammation. Probably all of it. Either way, this is the scariest part I've had to go through. I'm not the same person anymore :(

It really is horrible. I feel so sorry for my son. Having a 3 year makes this sooooo much harder than it otherwise would. That's what puts the pressure on me to heal. I have to be a mom whether I am sick or noT. It tears me up having to tell him I'm too tired to pick him or play. He's an awesome kid. He's incredibly understanding and strong. I try to tell myself when I am well it will make our days together that much more special. I don't find much comfort in that when it's painstaking to help him on the potty or when I forget how to make a pb&j for him..

I really do think I will be a better mother because of this. And I think the experience has a whole will make me a wiser person in general. I almost lost him when he was born.. so I've never taken him for granted. A lot of mom's don't know what thats like and don't feel every precious moment as deeply or profoundly as I do. And those hardships can be blessings if I choose to have that perspective.

I think everyone is right with thinking it's my guts. I thought really hard about it and everyday after I take my probiotics I feel a lot better. I think I'll double my dose and work harder on my diet. I keep forgetting how important your digestive system is when it comes to mood, our immune systems, etc....

Maybe I'll get some prebiotic too. Food for the good bacteria. I can put the good guys in there but if they don't have what they need they probably won't survive as well as they could. So I have some work to do.

Thank you all for your patience and kindness. Taking the time and using your precious energy to try and help me is so selfless. Next time my brain starts to fail I need to get in the habit of thinking "ooh! It's time for probiotics!!".

Thanks guys :) I'm really hard on myself. If I'm too tired to play I'll beat myself up over it for the next year.

Today will hopefully be better! The rain broke and it looks like the sun is trying to come out!

I hope you're all doing well this morning!