Twitching

You don't know for sure....but you most likely have both lyme and bart.
Bart can present with nervous system symptoms - and twitching in my case is from irritated/agitated nervous system.

I have done lyme treatment since July, and am working on cyst busting now.

Two reasons we suspect bart:

1. My symptoms aren't all resolving with lyme treatment.
2. I have bart symptoms.

Many symptoms could be caused by bart or lyme.

I have or have had: foot pain, rib pain, vibrations (feels like I'm hooked up to an electrical outlet), nerve pain, veinous pooling, anxiety, twitching. Those are definitely bart symptoms.

Some of them could also be attributed to lyme - twitching is one of them that could be either.

I have never had fatigue, or flu-like feelings.

I have a lot of pain.

So, often the Dr's will start with treating lyme and after awhile will switch to treating bart. Some Dr.'s start off treating lyme and bart together.

Yes, I herxed when I started Doxycycline on July 4th. I herxed on Day 4 with bad back pain...not my usual nerve pain on my upper left side...but regular back pain - mid back. I herxed for 12 days straight and then cut my dose of doxy in half for a few days...and the herx eased up. My mistake was when I started taking doxy on July 4th, I only did one day of half dose, then ramped to full dose...I should have stayed on half dose for a week or so.
I herxed when I added zithromax the end of July. This herx happened on day 3 or 4...and this time it was fatigue for two days. I have never had fatigue from lyme before. The herx just ended on it's own this time.

Other than those two herxes, since then I'm not really able to tell for sure when I'm herxing. I typically flare every day - late afternoon/early evening for a few hours. That's when my twitching would ramp up along with my nervous vibrations, and also my nerve pain on my upper left side.

The medications that do cyst busting are: Tinidazole and Flagyl. I believe they are both hard on the liver. For something non pharmaceutical, you can take GSE (Grapefruit Seed Extract), but there was some issues regarding contamination of the product. If you choose this route, start a thread and see what others recommend for GSE brands.

I am pulsing Tinidazole two days a week. I see my LLND in a week (morning after the Maroon 5 concert!!)
We will be discussing my high liver enzymes and possibly stopping Tinidazole...and starting Rifampin and doxy for bart..

I still question it, though...even though I apparently herxed. See - I just typed 'apparently'...as if it maybe didn't happen.

I just want to see more improvement.

So, you weren't on the lyme meds long before your Dr. switched you to Bart treatment?

and no improvement on the lyme meds during 8 months?

and are you saying you just haven't herxed on bart meds...or also not on lyme meds, either?

What lyme meds were you on?

It only means that your body doesn't get overloaded with toxins - so honestly, you are the lucky one, although I do understand your meaning when you say that those who herx are lucky.

But think of it from our point of view - we struggle with treatments, because if we kill too many bacteria too fast, we herx. We can create a herx by doing too much too fast for detoxing too. Back in 2007 when I was going through the worst of my infections, I thought I was completely doomed to live with this the rest of my life since I couldn't tolerate treatments or detoxing! It took tons and tons of work for 2 years straight for me to be able to heal the first time around!

Be sure that you are on high enough doses of abx to actually kill the bacteria and try to count your blessings in that you don't have detoxing issues.

Oh I agree that herxing is a "useful tool" - but we all need perspective once in a while.

Not having improvements is frustrating whether you herx or not!! You may need to treat another infection/condition first. I'm sorry, I don't really remember your details though. Is there even a possibility that you have another infection or some condition (like adrenal, thyroid or heavy metal issues) that may need to be addressed first?

What about leaky gut or heavy metals? Those are things that can create quite a bit of trouble when trying to heal.

Mold is another concern, as are other conditions. Here is a link to a thread that was just brought up again by someone else. You might find some very useful information in it:

www.healingwell.com/community/default.aspx?f=30&m=2598774