Lightheaded while Standing - Not POTS

I had POTS at one point in time. But what I'm expierencing now is not because My HR is only 5 bpm higher while standing then sitting.

I just keep getting waves of lightheaded woozy disorientation feeling while walking. So I dint know what to think, it started during a Sprint workout on the track 3 days ago and has been getting worse since.

I know this is a common problem, but not with out POTS I thought.

I associate light headedness and dizziness with babesia.

Our daughter was treated for bartonella (which she tested positive for through Igenex, lyme was only IND on 1 lyme-specific band) with 2 years of combo abx which included:

biaxin, rifampin, plaquinel, azithromycin, minocycline, tindamax, and at the end when the LLMD couldn't get her past 80%, malarone.

She weaned from abx at 80% improvement of her bartonella/PANS symptoms:

bartonella symptoms:

shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, extreme fatigue, nightly fever

PANS symptoms:

motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections

She had tested negative for both B duncani and B microti through Igenex.

Because I wasn't ready to discontinue treatment completely, we weaned to Buhner's bartonella protocol, which kept her at the 80% improvement level for 8 months. At that point I still wasn't ready to discontinue treatment and added some herbs from Buhner's babesia protocol (CSA specifically).

The addition of CSA to the bartonella herbal protocol resulted in a classic babesia herx reaction (air hunger, chest pressure, dry cough, large muscle pain, sighing, dizziness) which lead our LLMD to give her a clinical diagnosis of babesia (or babesia-like-organism).

So to answer your question we are using low 1/4 doses of Buhner's bartonella protocol (minus l-arginine) with CSA added to address babesia and have been doing so for 1 year now. Both my daughter and myself (her infections were likely congenital) are asymptomatic at this time.

It just dawned on me, I used to get dizzy if I stood up quickly but it has passed. This has been going on for years, wonder if hypothyroid could also do it? I am now being treated with ANX that treat Bart so maybe it was that.

Just some abstract thinking out load, if your blood pressure or heart rate won't change from a sitting to a standing position, then you have a neural issue causing a depolarization problem. Depolarization is when sodium and potassium create an action potential (electrical charge) that causes muscles to contract or transmit a signal down a neuron. What could cause an issue with depolarization? Rhubidium is a metal about the size of potassium and it can bind in the potassium receptor and can be transported in a similar fashion. It could cause this issue. Myelin degeneration could cause this also. I would want to investigate to see if rhubidium was the culprit. Cadmium also another metal to investigate.

Does anyone feel their pulse in their head when they stand from sitting?

It's like there's a heart beating in my head - only when my symptoms are flaring.

My BP is good, though.

I asked for thyroid testing last month-my pcp said the tests were costly & refused. I've gained 20lbs in 3 months& have chills & always dizzy/wozzy......hoping the specialist I go to will test me it. I fell down a set of stairs in Aug.-was dizzy-and broke my ribs. Fell in the shower last week and fell getting out of bed. Driving is hard.....

I hear mine in the front of my head...actually , don't know if I really hear it, or feel it. It's hard to describe...something pulsing in there.

This has got to be the freakiest disease - it's a wonder we're still sane....or are we? lol.

If you get dizzy when you stand up too quickly, that's POTs, regardless. That's the only explanation for that one specific way of getting dizzy. Your blood pools in your legs and doesn't get to your brain fast enough.

Heart rate isn't the only indicator of POTs. Your doctor should take your BP when you're sitting, and then immediately again when you're standing. That's the way mine checks my POTS, but nobody dxed it until I had a Tilt Table Test (ugh!).

M

I'm not sure I'd be willing to say she has POTS at this point. It could be orthostatic hypotension and that is much more common than POTS.

What I had during my workouts was an increase in CO2 build up. This is completely different than a lack of oxygen. I had plenty of oxygen. I had to lay down and it wasn't your regular "I need a breath" type situation.