Sleeping !!!

sueg

Veteran Member

Joined : Aug 2013

Posts : 718

Posted 4/3/2015 12:42 AM (GMT 0)

I get up by about 8 AM and by noon I am wiped out. I can sleep for the WHOLE afternoon, like I am drugged & groggy. I have had many LD improvemts from the IV tx. But the fatigue & walking weakness continue. (And the walkg issue freaks me out)

Do you ever get away from this fatigue??

tbohl

Regular Member

Joined : Nov 2014

Posts : 420

Posted 4/3/2015 4:56 AM (GMT 0)

Yes! Same here, my symptoms have improved so much but the fatigue and leg cramps, some joint pain... I feel more tired now than before

kayaklove

Regular Member

Joined : Apr 2015

Posts : 83

Posted 4/3/2015 6:46 PM (GMT 0)

Yes the fatigue was debilitating for me for a decade and now I can go skating for 2 hours, running, kayaking, etc. Very active. It gets better.

astroman

Veteran Member

Joined : Mar 2014

Posts : 9786

Posted 4/3/2015 7:27 PM (GMT 0)

when on abx, the anziety was brutal, but I was hyper alert all day. Now off abx I feel groggy and brain dead. No in between. Must nap.

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