New Therapy...through Picc Line

Hi Thankfulldad!!
Welcome to our community!! We're glad you found us too!!

Your fiance will likely herx, so be sure to ask about what to do to minimize it's effects for her. You can also check into our suggestions for detoxing in our "New to Lyme? Start here!" thread. If she starts detoxing now, before her treatments start, she will have a lower toxin load before she starts her them, making her less likely to experience a hard herx.

I don't know of the protocol that your fiance is following specifically, but if you have confidence in your doctor, and they are ILADS trained, then I would just say to try to have her get started as slowly as possible.

When you are up to it, we would love to know what herbs and supplements she's taking too!! We're kind of nosy - LOL! We don't want to suggest the things that she's already taking!

How long do you believe your fiance has been infected? 4 - 5 weeks of treatment likely won't be enough if she has had this infection for long or has other infections as well. If you are unsure about what's next, be sure to ask the doc!!

Hi Thankfulldad -

Your fiance isn't the only one misdiagnosed as having MS. Many forum members have also had that diagnosis.

I, too have many hot flashes. I used to have the tremors, but they have gotten better.

I just wanted to welcome you to this community..and say how wonderful it is you are reaching out on behalf of your fiance to help her get well.

Your support will help her so much!

Welcome!

My son used to fall a lot. Balance problems and a whole bunch of neurological "disorders" diagnoses that I didn't trust. He tested positive for Lyme and Bartonella. Did she test for Bartonella? Rocephin is good for Lyme but not for barto. If she has both (4 of us have both in our family of 6), she won't get much better until barto is addressed. So keep this in mind if she doesn't improve.

I do have friends doctors that believe infections are at the root of neuro disorders and cancer. So I don't trust MS diagnostics much. I was told by a ID dr that I "probably" have MS. I do not--it was Lyme and Bartonella all along.

Do you homework and trust God and miracles will come--at first in small doses, but they will come :)

Again, she will need a lot more than 5 weeks of any kind of therapy to heal from these infections. I've had the shortest healing time from Lyme for a very long standing infection that I'm aware of (I think) - and that was 1 year of treatment for a 40 yr old infection. Just to give you some perspective.

So are her hot flashes coming only at night? If so, that's a classical symptom of Babesia. And when Lyme and Bartonella combine, the Neuro symptoms can be a lot worse. We have some really extensive (& accurate) symptom lists in the "New to Lyme? Start here!" thread - please do read through it if you haven't yet. It has a lot of other very helpful information as well.

And I was once yelled at by a doctor in his office (at the top of his lungs) because he was certain I had MS and I refused to start treatments that very day. Good thing I didn't, since I didn't have MS!