Ridged muscles and tendonitis(osis) all over, do/did you have this? Any ideas?

This was my worst symptom and still is. Not to be confused with just sore , achy muscles, they can get ridged.

I spend 1/2 to 2 hours a day doing self triggerpoint release followed by special stretches (once loosened up). I'm quite skilled at this, and myofacial release. That is what keeps me moving, but after 8 years of it I'm burnt out on it.

The scary part is if I didn't know how to do this, I would have MS type movements and symptoms - jerky and limited range of motion.

This baffles every health professional I''ve met, and its a dead end road with them. One MD just said fibro. Yea, its a label. One Nuero said "Stiff Person Syndrome" or "myofacial pain syndrome". Once again these are descriptions, not diseases with known causes. LLMD thought ABX would help, but did so minimally I'm not sure that it was ABX for one year really helped at all.

Personally, I'm baffled that their are no specific "muscle Drs", that arent nureos. Or is there such a thing? The Drs that PT clinics have are a total joke. "Move this, move that, your fine". My Answer as I move slowly maybe with a slight tremor: "But it HURTS, thats not fine!" They dont get it. Its like I need a pain meter with a number for them to understand this.

I competed in very specific endurance sports in my younger years (with lyme or some other illness)and understand muscle "feel" quite well. These two coupled together might have made things worse for the future, but that's not provable. I still keep contact with some past competitors, and there not in pain like this. I know retired 70 somethings that dont hurt anywhere like I do. Sometime between now and then (in 20 years), I want to feel what pain free feels like. Ok thats an unrealistic dream, just less pain then.

I keep saying I'm going to do HH tea again to see If I get a Bart reaction. Right now I'm concentrating on genetic defects (with a Dr) which I was excited about at first, but has not made for pain improvements yet.

My latest non-lyme detective work is B6 toxicity which is related to liver methalation issues and copper toxicity (I have) which can make the liver worse and possibly create fatigue and muscle pain (possible with Willsons disease)..

Babbling here, with the thought that just possibly someone else has encountered the same thing but had it somehow corrected. open to any comments or suggestions.

I had very ridged painful muscles for a long time. Even just sitting around I was always tense, couldn't relax my muscles at all. I take muscle relaxers at night only and along with treatment it is finally starting to calm down.

Even years ago when I was having massage therapy and PT, my skin was so tight on my back that it wouldnt move and they finally got it to pop and then it loosened up.

If I can find somebody to help, I think I will do the bee venom therapy, sounds like it will definitely cure you where everything else is a guess.

Hope you find some relief.

Astro:

I bought the herb from 1stchineseherbs in powder form--that's all they had at the time. I tincture it myself. It's so easy! All you have to do is put some herb in a jar (NOTE: a little less than half if it's in powder form or it will swallow all the alchohol!) and then cover it with alcohol, shake it once or twice per day, and you have a nice tincture within 6 weeks. I tinctured about 16 herbs so far and others are in the makings! Something has to work! Since there are 4 of us infected, I save a lot of money this way. I did not buy any tinctures this far and we are all making progress with my homemade tinctures. I am not going to go bankrupt over some stupid tick disease! LOL

It depends how fine it is. Is it small pieces or large pieces? How big are they? I had to cut some of mine. Also you can crush them to make it easy for the alcohol to penetrate. So, how big?

Further research showed that a decrease in metallothionein could possibly cause your issue. Viruses have metallothionein and often bind unwanted metals like lead, mercury, cadmium, and nickel. Perhaps you have a couple of chronic viruses that are causing your problems. Tests for viruses involve antibody titers and multiple viruses could possibly decrease your immune response so that the tests that are performed could show a negative reading even if the virus is actually present. I'm just giving a plausible hypothesis to what could be happening. Combine this with the post you made one time about 1/2 of your body being affected and this points towards a viral issue.

Georgia Hunter-
The copper issue is complicated, and my results were from two years ago. Thats why I will ask for copper blood serum AND 24 hr copper urine tested soon.

I've always watched my calcium to keep tract of parathyroid (it can be related to Hashimoto), and my regular blood calcium is fine.

Wilsons syndrome per Wikipedia mentions a drug that is used to detox the copper its in the liver and it takes 6 months.

2 years ago- maganese was tetering on the low side. Magnessium was a little low even though I suppliment 400mg with mag glycinate (the best). Lead, mercury, cadmium, and nickel are near undetectable. Zinc is currently fine.

I know nothing about viruses. Are there a few antibody tests that are aimed at a wide swath at viruses? I mean, where do you begin?

I might make a post on viruse testing to get more input too - since I'm cluless in that area!

Thank you

Simela1-

Longest peices are about 3/4 inch.

I dont think thert
e roots. My HH is from Plum brand. Its a bunch of dried cut up stalks and leafy things.

astroman said...
GH - read this:

http://en.wikipedia.org/wiki/Wilson%27s_disease

I have high billiruban too and have had some of these symptoms.

Unless you have been tested for the ATP7B gene, I would say you do not have Wilson's Disease. You have elevated copper levels, but it's a pathogen based problem if you don't have the copper accumulation protein. Everything has a cause and it's either a faulty gene or something else (which is most likely a pathogen.)

Your physician has already stated that you have calcium deposits. What I look at is the way cations are transported through the cellular membrane. With pathogen based issues, the transport of cations can become inconsistent and accumulations of elements may occur in areas that they normally wouldn't accumulate. Extracellular polyamines, extracellular copper, depleted copper, depleted lithium, depleted iodine, or these elements are in short supply so entire systems don't function properly. The Kreb Cycle needs manganese to initiate and needs copper later in the process. Connective tissue needs manganese or it won't form correctly. The thread on here about thin skin, if your methylation pathway is impaired, you won't have adequate purine, pyrimidines, or even fatty acids to deposit where they need to be deposited. If you walk back every condition far enough, you can find a biochemical problem that is causing the condition. It is often deficiencies that are the culprit.

Heavy metal tests are not to be trusted IMO. Dr Yasko has a lot of experience with heavy metal testing in her autistic patients and they would test negative for months on end and once she get their methylation pathway running, the metals would pour out. If a heavy metal is bound to a virus or bacteria, it won't show up on a metal provocation test. The only way to get it out is to get the immune system functioning enough to kill the pathogen and then the metal is released.

IMO, your body may be responding in the best way it can to combat the replication of something. Perhaps increasing copper levels is your body's attempt to decrease replication of that something. Copper does inhibit the growth of many bacteria and viruses. That's why door knobs in hospitals used to be made of copper.

Our body sometimes decreases copper levels to combat fungal growth.

http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0012503

Maybe it does the opposite for viruses?

http://aem.asm.org/content/59/12/4374.short
http://aac.asm.org/content/41/4/812.short

Here is an example of the body decreasing iron to inhibit pathogen growth.

http://iai.asm.org/content/67/12/6403.short