R arm

Oh Sailor, it's hard not to get tired of the fight, sometimes. Getting better is very hard work.

Herxing can affect your mood, toxins literally poison your mind. Are you taking anything to help with your mood? Like Sam-E, for instance? A couple weeks ago I was starting to feel a little down and overwhelmed by, well, my life! Then I realized I had forgotten to take my vitamin B complex supplement for a while. Are you taking that?

You will get better!

I would recommend taking a good b-complex Sailor. You don't EVER have to apologize here...you can rest easy knowing that no one here will judge you, it's not like we don't know what each person here is going through. This is a place to heal, a community where we can come together and share knowledge but also support each other; so don't apologize :). If you want the name of a good b-complex I'm happy to sure it with you.

SK,

I'm so sorry that you're going through this. I wanted to share with you a link to Stephen Buhner's talk on Lyme and co-infections
https://www.youtube.com/watch?v=QkKhRt2VtVw

In a question and answer section (sorry I can't remember where it's at and the talk is about 4 hours long but so worth it) a woman tells Buhner about several of her family members all living in a certain area who were diagnosed with ALS. He doesn't speak specifically to the ALS part of it but tells her a story about a woman who needed a cancer treatment that was not available to her and ended up passing away. His take was that had she pushed to find the treatment herself her outcome may have been different (it went something like that). This idea that we have to question some of these diagnosis and push and try alternative ways, don't just take it lying down so to speak.

I don't know if you've listened to him or read any of his books or if you're trying herbals along with abx. Just wanted to share this with you in case it resonates.

Do not give into fear, it will make you feel worst mentally and physically. When I found out that i had lyme, i cried everyday for three months. I felt all the symptoms defeating me at that time. I had no hope for the future, i lost twenty pounds and i looked sick according to people. Then I just took control of it. I said to myself that I was gaining nothing, but harming myself. I held on to my faith in God and declared war on these bacteria. I had great support and knowledge from this forum. I stopped wondering about the future and I started focussing in my family. I live day by day because tomorrow doesn't exists.
Try to distract yourself, don't think about lyme too much. Enjoy life, you are still alive, enjoy every minute. I always think that I am fortunate to be here.... If i could ask a dead person to trade places with me, he/she will probably take lyme with a big smile and take the given chance to accomplish what they couldn't when they were alive.
The least you think about lyme, the better you will feel. I know that it can be hard with the symptoms. I always think that i did a hard workout and that is why i am hurting. Of course, keep treating it, but don't let it take the best of you.

I think so too Lymie Girl. The mornings are the WORST when it comes to my anxiety, I wake up anxious and it goes spinning off from there.

Thank you Elmesanyo for your kind words. I am glad to have the support I find here.

I know what you mean Sailor - I think mine would start even before i woke up - like while I was still asleep, in my dreams maybe. Because as soon as I woke up - before i opened my eyes, the anxiety would already be there. I wasn't consciously thinking about anything to cause anxiety...it was just there, waiting for me...lol. I had this doom and gloom feeling that my symptoms were worse than yesterday...

Mine is almost gone now since treatment.
Now and then I wake up with a little anxiety...and I don't give it any thought...I start thinking about what I'm going to do for the day - even if it's just going to an appt. or taking a walk in the back yard....and tell myself that I am healing...and tell myself I'm going to keep getting better....then I get out of bed...and realize that everything's okay..I'm okay...same as yesterday....not worse.

Just keep on fighting it....it is not stronger than you!

Thank you Girlie 💚

It's the best help ever Traveler.

This morning not as bad. Yesterday fasiculations were the worst I think they have ever been and had migrating pain.

My llmd is giving me ldn, any experience with this Traveler?

Cheerleading for you over here in the UK too, sailorkim! Try & stay strong - so many of us here have suffered with anxiety and depression because of this disease, so we completely understand. This forum is such a huge support. Never be afraid to come on here and just let your feelings and fears out . . . we've all been there, and experienced anxiety and feelings of despair, but it WILL get better.

Hang in there and keep fighting! Sending hugs xxxx

Sailor, the good thing about all of this is that it will pass. With the right treatment and a lot of patience, you will see those symptoms disappearing.
We can understand how you feel. I know that in my case there was a time where I thought that I was doomed, no way out of this. The wonderful people on this forum were of great support. They were the ONLY ones that understood how I felt. This is a great place to vent, to let your inner fears and your worries out.
I am on treatment and as time went by, I started to feel close to normal. It is a battle, I am not going to tell you that it is easy because it is not. But if you stick to your protocol, pass the herxing days, you will start to see and feel the difference. You will get better. Focus on that "I will get better... I will win this battle."
We are here for you....