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Posted 4/28/2015 2:04 PM (GMT 0)
So I have been treating lyme with low dose herbals for about a year. I'm still sick but have had improvement. I've continued with a regular doc too. A while back they were thinking lupus but I really don't believe that I have it. One doc already ruled out all autoimmune. Now they are trying to see if I should go to see a rheumatologist. My lyme is IGENEX positive but not CDC positive, so it's hard to convince my husband. Anyway my ANA was diffuse and positive at 1:160 and now it's speckled and positive 1:40. So seemingly it's gotten better? Anyone else getting ANA tests? Has anyone had theirs go normal after treating for lyme?
Posted 4/28/2015 2:14 PM (GMT 0)
Louise- this is not in response to the ANA question you had but in response to some of the elements in your post. Are you seeing an LLMD? In terms of your herbal treatments, are you seeing someone who is well-versed or trained in traditional chinese herbs? You also said you were IGENEX positive but not CDC, what more does someone need to be convinced??? You have the only lab in the country who is recognized for testing tick-born diseases and infections as accurately as can be done today. Are you also on antibiotics or just herbs? How is your detoxing protocol going?
Posted 4/28/2015 2:31 PM (GMT 0)
Dave,
I went from severely ill to moderately I'll in about a year. I'm doing the jernigan at home protocol from the hansa center. One of my symptoms is extreme reactions to meds, so I'm going low dose herbals and super slow. I had a LLND but ran out of $$ cause I lost my job. I did 2 months of abx and was doing well but my gi system crashed so I stopped and switched.

I live in MA an have about a thousand deer in my yard at any time. So I don't doubt the lyme. Plus I had a bullseye on my back a few years ago that was written off as a spider bite. Sigh...

I do try to detox but my genetics are suboptimal!!!

My only abnormal lab is the ANA.
Posted 4/28/2015 2:57 PM (GMT 0)
Hi Louise- I'm sorry you lost your job :( things will start to look up for all of us, it has to! Is your doctor that you see now familiar with lyme? Have you considered going to a traditional chinese herbalist who knows about lyme or a naturopath?
Posted 4/29/2015 4:09 PM (GMT 0)
Louise,

My ANA has been positive for several years. anywhere from 1:80 to 1:640 in the several times its been tested. Before I was diagnosed with Lyme, I was sent to a rheumy. After throwing a lot of money at him, he finally told me they probably wouldn't know exactly what I had, at least to the degree to put a name with it, and promised to treat my symptoms and keep me comfortable. This to me made it sound like I had an incurable disease and I was going to die from it. I stepped out of his office and havent returned :p

My LLMD said a positive ANA is very very common. While mine is a bit higher than he normally sees, he said he wouldn't pursue it until the Lyme was under control. ANA basically measures antibodies that cause inflammation which is afterall fairly common with lyme. After he explained that, it kinda made enough sense to me to shelf anything with the rheumy until after my lyme was gone.
Posted 4/29/2015 9:02 PM (GMT 0)
My answer to a previous post on ANA:

Our daughter's was positive ANA 1:180 speckled type. She was also diagnosed with the autoimmune reaction PANS(Pediatric Autoimmune Neurological Syndrome)/PANDAS(Pediatric Autoimmune Neurological Disease Associated with Strep B Infection).

With treatment for bartonella (she was IND on the WB for lyme but was not treated for it specifically, although it may have been addressed with the multiple combo abx used for bartonella), her ANA declined to negative and her autoimmune reactions have resolved.

I always assumed the speckled type (associated with cartilage involvement) was the result of damage done to cartilage by the lyme bacteria.
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