Anyone have bizarre finding show up in medical exams?

Sorry
I have nothing for you. But I'm glad you're posting and hope you find answers soon. Are you seeing a Naturopath or integrative specialist?

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Pirouette, I'm still in the stage of getting the testing done. I know I sound like I have already done that and tested positive, but I haven't had the test run yet. Having done the research and looked into the symptoms lists (Especially, Dr Burrascano's), I feel that I would be diagnosed clinically with Lyme. Some of the symptoms I have had never fit into the Fibromyalgia diagnosis, but make complete sense if you look at it from the view of a Lyme diagnosis.

My Rheumatologist grudgingly signed the order for the Igenex testing. I am still hunting for someone to treat me. So far I have been less than impressed with the names given to me by IDSA or ILADS. One is a crook as far as I can tell and even if he wasn't from stories I have heard we would not get along. He does like to questioned and I question everything. The others have either little or no information, so I have to spend some time talking with the staff to see how things work in their offices and then decide who might be the best fit.

Fronton, It wasn't liver enzymes. My doc found that my liver was enlarged on a physical exam. It's something that I noted in the back of my head. There are lots of things that seem to be "wrong" in my body, but are not bad enough to come up in conversations with my docs. I wondered about my liver because it seemed an odd finding.

gkamom said...
Pirouette, I'm still in the stage of getting the testing done. I know I sound like I have already done that and tested positive, but I haven't had the test run yet. Having done the research and looked into the symptoms lists (Especially, Dr Burrascano's), I feel that I would be diagnosed clinically with Lyme. Some of the symptoms I have had never fit into the Fibromyalgia diagnosis, but make complete sense if you look at it from the view of a Lyme diagnosis.

My Rheumatologist grudgingly signed the order for the Igenex testing. I am still hunting for someone to treat me. So far I have been less than impressed with the names given to me by IDSA or ILADS. One is a crook as far as I can tell and even if he wasn't from stories I have heard we would not get along. He does like to questioned and I question everything. The others have either little or no information, so I have to spend some time talking with the staff to see how things work in their offices and then decide who might be the best fit.

Fronton, It wasn't liver enzymes. My doc found that my liver was enlarged on a physical exam. It's something that I noted in the back of my head. There are lots of things that seem to be "wrong" in my body, but are not bad enough to come up in conversations with my docs. I wondered about my liver because it seemed an odd finding.

Liver enlargment can be sign of infection, such with fatty liver,alcoholism, hepatitis, (malaria or babesia if you been bitten by a tick or a anopholese mosquito, it can also be a deficiency or chemical related toxicity).
I have looked at some LLMD in my area, some of them are very shady, the yelp forums help alot. b12 deficiency can cause enlarged red blood cell, a type of anemia.
What liver testing are you getting done in the meantime?
to see any kind of inclusions in rbc, you need a special stain for it, they usually have microscope that are good in combination with the staining methods.

Pirouette, I have asked in the forum about doctors in my area. I also got names from ILADS and my eye doctor. She got me started on this journey because she had been to a professional meeting where the speaker talked about a patient who had been to doctor after doctor for 20+ years until finally someone tested her for Lyme. That was the answer and she was able to get treatment. It happened to be his wife.

She had gotten information from the speaker for another patient and kept it. When I saw her in December she talked to me about it. She knew that I was originally from New England (I grew up there) and she knew my symptoms started in my teens.

So I looked into the LLMDs she gave me, the ones I got from ILADS and the ones I got from here (thanks for directing me here). There was a lot of overlap.

I checked on YELP and the one MD got one very bad review. The woman said that he would not tolerate anyone questioning his treatment protocol. She also said she spent thousands of dollars with no relief from her symptoms. That nixed him because I question everything. But I did some more investigation about him to be sure. On his website, he actually said exactly what treatment he used. It was $800 to walk in the door. At each appointment he (actually a tech) would run a specific test every time to "measure" your recovery. The test was non-negotiable. The treatment was the same for everyone. At each visit, you would only spend about 15 minutes with the MD. In this case, you were paying out of pocket because insurance wouldn't cover any of it, I would expect for that much money I would get to spend more time with the MD. I did some research on this test that "measures" your improvement because it didn't make sense that it was possible to do what he said it would do. What I found was that it was untested and unproven, with not even any anecdotal evidence.

There was little info on the other practices that treated Lyme. I've researched a bit, but I will have to do more. I know that nobody in my area treats with antibiotics. So I am researching the treatments to determine who I think will best work with me.

zasc - We really haven't done any testing of the liver. It was just noted in an exam. I didn't have any other symptoms. I have had low B12 and I have been able to change that with supplements. Everytime I go in, we check B12, D and potassium because I have had trouble with all three at one time or another. The potassium was from high blood pressure meds. The other two are likely as much depletion as not enough intake. Both the B12 and D seem to be ok as long as I take the supplements.

What I find interest is that babes can cause the enlargement. I have many of the babesia symptoms. The other thing that is interesting is that in December when I saw my rheumatologist he ran a bunch of tests (all negative) because I had new pain in all my joints as well as other symptoms he asked about when I reported the pain (dry eyes, dry mouth). He put me on Plaquenil which is an anti malarial. Some of my symptoms completely resolved including most of the joint pain. Some of the symptoms that resolved were the odd ball ones that didn't fit with the Fibromyalgia diagnosis.

As a matter of fact, I had described some pain on the bottoms of my feet and my doctor said he had never heard anyone describe that pain before. This was before I learned about Lyme.

i found out something strange with my bloodwork i guess you could call rare ..... I have A low anion gap and i have no idea what that means and my doctor really didnt discuss it but online it says its rare to ever have a LOW anion gap