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Just can't imagine being normal ever again

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Posted 7/7/2015 2:54 AM (GMT 0)
You keeping trying and learning.
The people I know that cured their lyme after many years all
worked on both killing the lyme and strengthening their body. Its
your own body that finally takes care of the lyme.
Posted 7/7/2015 3:05 AM (GMT 0)
Yes, Magoo - keep on fighting the fight

Even though I have many symptoms that haven't budged after being on antibiotics for 10 months - I just feel stronger - my body feels more normal than it did a year ago. I'm hoping it means I'm tipping the balance...in the other direction now...not getting sicker...but getting healthier.
Posted 7/7/2015 3:07 AM (GMT 0)
DazedPete,
I'm with Traveler on this. I think going through this changes us.
Change isn't a bad thing and normal is highly over rated. I believe we will all be better, more compassionate versions of ourselves.

Hang tough. Believe there is a light at the end of the tunnel.

Have you looked at this http://www.lyme-symptoms.com/LymeCoinfectionChart.html
That's from the Welcome to Lyme section 4th post down. I found that really helpful since we all know the co infection tests are crappola. If one of the co's match what you are dealing with you can discuss with your dr and start treating it.
Posted 7/8/2015 1:52 AM (GMT 0)
We all learn the hard way that this disease and overcoming it is a long, drawn out process. Remember the time when people said whew aren't you glad you know what you have? That might work for most problems but not Lyme! Take it a day at a time and don't dwell on all the negative things that have happened to you because of it. I hope you have an excellent LLMD there's no price one should be willing to pay for one's health.
Posted 7/8/2015 3:03 AM (GMT 0)
I read this a few days ago: "Normal is a state of mind. What is normal for the spider is chaos for the fly". So yes, I agree with those of you who say that I will never be the same after Lyme. And you know what? I am OK with that because Lyme has shown me the other side of the coin and has made me more humble.

How does that saying go? don't judge until you walk a mile in someone's shoes? Well, I am now walking in someone else's shoes and it is hell!

A few years ago I was so, so ill that I made my final arrangements. Made my will, talked with my wife and kids about my life insurance and what they should do after I left this world. It wasn't "if I die", it was "soon after I die". I felt this way because every organ, muscle and bone in my body was failing. Laughter, happiness and feeling well were but a fleeing memory. And them I found someone willing to treat me and slowly (very slowly) I began to get better.

It has been 3 years this month that I first got sick. That is 2 years and 11 months longer that what I thought it would take to heal. But you know what? As long as I am alive I will continue to have hope to one day be normal. Whatever the new normal may be. I have been much, much worse so anything better than that I will take any day of the year.
Posted 7/8/2015 2:53 PM (GMT 0)
hi DazedPete, I hope you're hanging in there.

Just thought of this, I have no idea what your protocol is, but sometimes exploring the parasite angle can help people make big gains with these illnesses. Rosner talks a bit about this and I think he might be on to something for some of those recalcitrant hard to treat cases: http://lymebook.com/ivermectin-albendazole-diethylcarbamazine-alinia-mimosa-pudica

Could be worth exploring at some point if you don't see improvements with standard lyme protocols after a while?
Posted 7/8/2015 6:11 PM (GMT 0)
Lots of great comments here! Just goes to show this is our own personal journey to grow and become the people we are meant to be....
To let go and move on and learn to be content. It's really cool and I'm so glad God has given me this opportunity...
Posted 7/8/2015 10:40 PM (GMT 0)
I really like your post candleinthewind. I've promised myself that whatever the outcome, I will make the most of this terrifying experience and learn everything I can and use it to hopefully be a better person. I will create value out of this whole experience.
Posted 7/10/2015 2:35 AM (GMT 0)
Hi Pete - it's possible! I never thought I would get to where I am. Feeling great and my mind is sharper than ever.

Like trav, this darn disease has made me appreciate life. I have a whole new outlook. Each day is a gift.

Keep fighting. It took me a long time and I fought hard but I did it. My husband is still fighting hard to get there as well but believe me, it's all worth it.

Best to u.
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