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Posted 7/7/2015 1:12 AM (GMT 0)
Hi everyone! My Dr has begun to pulse my antibiotics and on the days off the antibiotics my symptoms are flooding back. Has anyone experience this? And if so how did you handle it? Any advice on how to approach the Dr in a way that I can get something done now? I feel horrible in my own body! I've talked to the rn several times and she always confers with him. Right now he wants to try this for a month and then have me see his partner to see if he could catch something maybe he missed. I can't wait that long! I can't stand myself and am alienating all those around me with horrible rages and mood swings. HELP!
Posted 7/7/2015 1:39 AM (GMT 0)
How many days on/days off ? How many days before the symptoms come back? And how long back on before the symptoms subside?

Maybe you could increase the days on, or decrease the days off for awhile?
Posted 7/7/2015 2:41 AM (GMT 0)
Welcome to the forum. There is another user named dancingbear* so you were not greeted by the moderators as a new member.

There is a lot of helpful information in the "New to Lyme ...Start here" thread pinned at the top.

How long have you been in treatment and what abx are you pulsing?
Posted 7/7/2015 2:59 AM (GMT 0)
Oh my goodness! Thanks jrpsf!

You know I kept thinking - I thought her name was Dancingbear, not bears.

I should have noticed the total posts = 1.

So, let me officially welcome you to our community, Dancingbears! I hope you find this to be a supportive place where you can visit.

If you haven't already done so, take a look at the thread at the top of the page, titled: "New to Lyme?..Start Here!" - it's full of important information - symptoms lists, detox ideas, information on probiotics, and more.
Posted 7/7/2015 12:15 PM (GMT 0)
Pulsing doxycycline mono,tindimax,ceftin,nystatin. 3 days on and 4 days off. I've been in treatment for 2 years. Symptoms are bloating weight gain,pain(all over) fatigue, swollen feet, legs, and hands. Night sweats fever headache, hot flashes,blurred vision, vertigo, EXTREME mood swings. Thank you all for your input.
Posted 7/7/2015 2:41 PM (GMT 0)
I think if you reversed and did 4 days on and 3 days off, that would work better. That was my pulsing schedule for Tindimax. For the other antibiotics, 3 days out of the week might not be long enough to make a difference... It's also possible that you might be herxing on your days off. I'm not familiar with pulsing therapy though. I take my antibiotics continuously and only pulsed Tindimax.
Posted 7/7/2015 4:11 PM (GMT 0)
Are you doing enough to detox your body - to handle the die-off toxins?

That is key to manage your herxing.
Posted 7/7/2015 4:21 PM (GMT 0)
Hi, welcome to the forum.

I am Dancingbear. with a capital D and no s at the end.
Posted 7/7/2015 7:37 PM (GMT 0)
I've done the same as Inspired. I've taken one or two abx continuously and then pulsed the Tindimax. My pulse was three weeks on and three weeks off.

Have you done any treatment for Bart? The rage sounds like Bart.

Have you looked at this? http://www.lyme-symptoms.com/LymeCoinfectionChart.html
Scroll down to the second listing of Bartonella.
Posted 7/8/2015 1:45 AM (GMT 0)
I'm experiencing the same thing you are. The idea of pulsing (which you probably already know) is to not send the critters into hiding but let them stay exposed so the antibiotics can kill them. I'm on cefdinir/tindamax and a few other non-abx things on a M,W,F schedule. On the days I take them I feel the die off on the other days sometimes I do sometimes not. Remember there is a half life to the drugs for example Tindamax is 12 hours so the drug is still in your system for almost 3 days after the last dose.

While everyone is different I prefer the pulsing schedule of one day on one day off so the bugs aren't seeing a high consistent medicine load which they could determine is toxic and go into hiding.
Posted 7/9/2015 10:09 AM (GMT 0)
Hi,

Last year, my doctor had me pulse antibiotics three weeks on, 3 weeks off. It was very hard at the beginning, especially watching myself lose major ground. But it did get easier after a couple of cycles. I did this for about 9 months and it did wonders.

After that, I went on herbs, LDN, and Transfer Factor. My health continues to move in the right direction.
Posted 7/10/2015 1:22 PM (GMT 0)
I pulse for bart and lyme. Allthough i dont know if pulsing for bart is the right thing since it divide itself every day. Lyme once a week.
I'll take ceftin 2x500 mg and tetracykline 4x250 mg tuesday to thursday. Then four days off.
Tetracykline has a half life of 22 h. Ceftin only 90 minutes. Ceftin crosses bbb very godd. Tetracykline only fair.


i completed my thirds puse week... i think iam progressing. my fatigue is much lower... and i have been able to talk long walks. with great deal of aches afterwards.

I noticed hives on my hands after i quick walk. i think i drew out some bacterias due toe increasing blood flow. those got killed by abx. I think it really important to do mild exercise when you are on abx. cause bacterias hide in tissues where abx cant reach them all that well.. you also know the oxygene part ofcourse.

i also take herbs against my invaders everyday. doses that i increaseingly get stronger.

Post Edited (krissi) : 7/10/2015 7:33:28 AM (GMT-6)

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