Posted 7/9/2015 8:12 PM (GMT 0)
Hi IHL
I'm not sure, to be honest. I can tell you what my response was when I first started with the Rocephin but not sure what to tell you about your trial.
I had MAJOR psycho/neuro responses for the first couple of months after starting the IV Ceftriaxone (Rocephin). They were very severe at first, I had anxiety attacks and meltdowns nearly every other hour for the first couple of weeks. Then they subsided quite a bit but I still struggle cognitively and have moments of lyme rage (but much much less). And my joint issues are much, much better (I can walk again) and my GI problems are also significantly better.
The more abx I take, the worse my detox gets so I took a break this past month, went down to a low abx dose, so that I could get a better handle on my protocol. I'm doing better and started full abx dose yesterday and I can feel the wave of psycho/neuro coming back.
Yesterday/last night after my first dose at the increased level, I felt pain deep in my bones all over my body. Only then did I notice that this kind of pain had also become better after starting the abx. I think I was herxing a bit… the good kind when you know something is getting to the infection.
Detox, detox, detox. I'm also starting with pure cholestyramine as soon as it comes in the mail. I'm hoping this will be a better binder for me. I really, really need to do detox baths but Mmy biggest detox problem is I have a neurosis regarding the bathtub… I call it "lyme neurosis" where the infection messes with logic in my brain and makes me scared of germs in the bathtub… the bathtub is so clean it looks brand new. But I can't get into it. Anyway, my detoxing issues are a huge barrier for me.
I've been on the Ceftriaxone since Nov. I've had so many problems w/ the port and the IV (I have a port in my chest, rather than a PICC line installed in my arm). Both deliver abx the same way. But my port shifted up towards my shoulder after it was installed (plus it took 2 months vs. the usual 2 wks for the tissue around it to heal). When the port shifted up, the catheter attached to it, which is threaded up toward the main vein in your neck and down into the heart—shifted downward… so far down that it has caused problems with my heart. All the heart issues took a couple of months to troubleshoot, we thought it was my meds so I went off my treatment, basically, for 3 months while I had tests done w/ a (useless and crappy) cardiologist...
And the catheter gets sucked up next to the tissues and "stuck" and meds can't get through. Plus the home health care nurses are not as experienced as they should be and ALL but 1 has a very difficult time accessing me each week (reinserting the needle to give meds). Consequently, for nearly 5 of these months since I had it installed, I was only taking the abx for 3 wks at a time, then we'd have to stop, troubleshoot the port, go back to the surgeon, etc… In the end, I blame the surgeon for installing a catheter that is too long and the nurses who seem to be the "B" team. Most seem to be competent nurses but they lack some basic experience for what they are hired to do, accessing my port. I mean, that's the whole reason they're here. This has cost me precious, precious time. I finally stumbled upon one brilliant nurse and I requested only her. The company balked but I got heavy with them and they acquiesced. My insurance company chose the company and they have been incredibly supportive w/ approving nearly every aspect of my treatment, so I really don't want to rock the boat w/ them.
ANYWAY, it has only been about 2 months since I started getting the abx consistently for at least 4 or more wks in a row. I share this because I should be so much better by now, but it's only recently that I've had the abx consistently. It is so frustrating how dragged out this has become. So, I am not really a good example for the effectiveness of the IV or the Rocephin or any other aspects of the treatment.
Hope this helps answer your q… Let me know if you have any other concerns.
-p