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too much herxing --okay to stop nystatin?

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Posted 7/18/2015 9:05 PM (GMT 0)
I just did 9 days of nystatin (mycostatin, just the regular pharmaceutical pills)... I've been very sick starting the very first day.. Intense disorientation, dizziness, nausea, body pain, a seizure, bloating, and white stuff in my mouth.. And just generally feeling terrible. Despite my disorientation recognized a couple days ago that maybe it was getting to be in the not-good-for-me range. I asked my doctor and he told me to come off it and detox. 2 days later I'm still feeling pretty awful (can it take a while for the die-off symptoms to subside?) Is it okay to come off nystatin or am I inviting all the yeast I just killed to grow back? And... any particularly good detox methods for yeast die-off?
Posted 7/18/2015 9:12 PM (GMT 0)
As long as you are not eating sugar/simple carbs or on abx, it's ok to stop temporarily and concentrate on detoxing!

But if you are, you need to continue to Nystatin.

My guess is you aren't detoxing well. What is your protocol and have you been tested for DNA methylation and detoxing mutations?

p
Posted 7/18/2015 10:05 PM (GMT 0)
That's helpful information.

I'm eating raw veggies, the only fruit is grapefruit, seeds, and I eat some no sugar added coconut milk products... I think I'm pretty low sugar. Could maybe be a little better.

I'm on the Byron White formulas, which my doctor says aren't generally antibiotic (don't kill good bacteria) but I'm not sure that's accurate??

I suspect I'm a poor detoxer as well, since I seem to herx very aggressively on not too much treatment. I have not been tested for DNA methylation or detoxing mutations. Is that very helpful to know those results? Right now I eat clean, jog, use an IR sauna, do a coffee enema every day (I don't think I could make it a day without this), take some of the UNDAs (to draw toxins out of organs) and activated charcoal... Anything I should add?

Thanks!!
Posted 7/18/2015 10:18 PM (GMT 0)
I'm on the BW formulas too! Powerful stuff. No, they don't disrupt good bacteria like abx do but some suggest they still do lower the count. But the main issue is that these types of tinctures are basically alcohol and alcohol converts to sugar very quickly. We've had other posters here who have developed yeast/fungal imbalances because of the tinctures and that can impact your treatment, as you know.

Your activities are really great. Good for you. Since you are really getting your blood moving you might look into dry brushing to help move the blood through your lymph filters. Probably most important is a binder for removing the debris from your digestive tract (particularly the dead yeast/fungus), you could take it twice a day. Maybe implement some detox tinctures for your liver and blood like milk thistle seed, burdock root, bur bur(sorry, more tinctures) and since your skin is your largest detox organ, detox soaks with epsom salts, sea salts and hydrogen peroxide (but go slowly) will do a lot to help. But others here have had great ideas so do a search or post an inquiry.

I thought DNA testing was straightforward, but I've since learned it is not. ;)

Here is more info on how to very easily test (forego the MD's blood tests as they are expensive and look for only two mutations). Quite a few posters here have done impressive research into compensating for the mutations so after you get a little more acquainted, I would post a new thread w/ specific questions and/or do a search for "DNA mutations" or "methylation".

23andme
www.healingwell.com/community/default.aspx?f=30&m=3413587&g=3414439#m3414439

Hope this helps.

p

Post Edited (Pirouette) : 7/18/2015 4:22:31 PM (GMT-6)

Posted 7/21/2015 11:06 PM (GMT 0)
Pirouette,

Super helpful. Thanks for the great ideas.

I ended up coming off the Nystatin tablets at the urging of my doctor. 5 days later and I'm still experiencing a lot of the difficult symptoms I mentioned (disorientation, dizziness, body pain, and white stuff in my mouth). My doctor said these are die-off symptoms (They did begin with the Diflucan and then intensified with the Nystatin). I can't imagine these medications CREATED a yeast problem, so I guess these symptoms 5 days later just means my body is still trying to get rid of all of the die-off debris?

It was such a difficult month of all the die-off being on the Diflucan and Nystatin.. Was it for nothing since I wasn't able to stay on the Nystatin right now?

I'm a little stunned that I seem to have such a yeast problem since I've always thought of my diet as pretty good. I guess those with Lyme tend to develop yeast problems? I do have the pure Nystatin powder coming to me in the mail next week, but I'm not sure if I should start up again yet, though, or attempt some sort of gentler approach...
Posted 7/22/2015 1:06 AM (GMT 0)
I just wanted to confirm that while herbals aren't as hard on the body generally speaking, as pharma abx. But, that doesn't mean he they won't cause yeast issues!! I have used only herbals for a while now, and I had to eat,h very carefully for yeast/fungal issues - and had to treat for them each time I was on herbals.

I too would question if you had gene mutations that are stopping your body from detoxing well enough. If you find out that you have those gene mutations, there's supplements that you can take to overcome them.

And don't restart the nystatin until the herxing stops, otherwise your toxin load will go right back up where they were when you had to stop.
Posted 7/24/2015 2:10 AM (GMT 0)
marigold...

First, how are you doing, now?

If you are doing much better, that's great.

Regardless, it is very likely that you stirred up the y/f overgrowth w/ the pills but didn't quite finish the job, otherwise you wouldn't still have those sx. 5 days is a little too long to be die off, IMO. You gotta hit y/f hard and for awhile to get to it all (the pills do NOT reach all the y/f so people experiencing both yeast growing and die off, which can be quite confusing.

When the powder arrives, I would SLOWLY take your introductory doses and slowly titrate up to max doses. Follow the dosing info below but start with only 1/8 t twice a day and slowly increase in a few days, and keep increasing once the sx die down. So when you start feeling better, increase the dose and don't go too far until you start feeling fewer sx. Let your body detox what you're killing.
drmyhill.co.uk/wiki/Nystatin_-_how_to_take_it

Also, if you follow the chart, it will likely max you out because it maxes out at about 2,000,000 units per day (2 1/2 t) and your Rx was probably for 1,000,000 units per day. But try increasing per the chart and in the interim, try convincing your MD to prescribe more. With your issues, you'll need to be on the powder for a few months, perhaps longer. Even though your diet isn't hugely problematic, you seem to react to the sugar or the lack of good bacteria severely, like me.

And, if you don't implement a solid no sugar, no simple carb diet, the Nystatin is fighting a losing battle....

Hope this helps! Pls let me know if you have more q's

-p
Posted 7/25/2015 3:42 AM (GMT 0)
Pirouette,

You wouldn't happen to know anything about parasites would you?

I was greatly disconcerted to find that I have them!!

What to do?

Margaret
Posted 7/25/2015 4:23 AM (GMT 0)
Hi Margaret—

I'm sorry, I am not a good resource for parasites. Before I knew I had lyme & co and was desperately trying to troubleshoot anything and everything, I implemented an intense parasite cleanse that nearly killed me… I plunged way too deep too fast so I can't even share my own experience as advice.

But I learned a lot of good info from this website, that might help you:
www.earthclinic.com/cures/parasites.html

I've read that for most parasites, elimination is mostly straightforward. But, this can be pretty hard on the gut—so people like us have to be pretty careful since we are already so overloaded. Hope you get some answers!

-p
Posted 7/25/2015 6:43 AM (GMT 0)
Pirouette, You're so sweet to check in. Actually this has been one of the hardest weeks I can remember.. Just as hard as any of my lyme/babesia herxes. I totally wasn't expecting this. I talked to my doctor today and he had the same assessment as you... That I stirred up the yeast with the pills. That I must have killed some and am going through die-off, but that also this is just the stirred up living infection... That we've discovered a big problem and it was just the tip of the iceberg. He wants me to try the pure nystatin at a lower dose when I start to feel a little better. But he's not clear on whether the nystatin is going to be too aggressive for me. It seems I'm in a bit of septic shock at the moment. What a scary month.. Being too disoriented to realize how sick I was becoming and so not doing anything about it! I rarely take this approach with myself, but I think for right now it's got to be a day-at-a-time kind of a scenario around here. I hope that I can get back on the nystatin soon but I think I just need to get more stable first. In other news my living situation is up in the air as possibly there is a mold problem in my apartment... I mean, I see black mold growing, but the test I did on the unit was inconclusive about whether it's dangerous mold. Trying to decide whether to move into another unit of the building and hope it's just a my-unit problem (there is a history of flooding in just this unit) or whether I need to find a new place altogether. Possibly I will put off the nystatin until I've worked out where I'm going to be living. I just hope that putting it off doesn't somehow make it worse.
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