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have bartonella, are there drs, that help with lyme and autism

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Posted 7/21/2015 4:22 AM (GMT 0)
are there good lyme drs that help with autism

and tourettes like , involuntarily movmements, vocalizations

severe memeory problems

been ill for years

so not much money left


In the U.S or Europe
Posted 7/21/2015 4:35 AM (GMT 0)
yes, there are. I don't know their names, but I belong to a Facebook group called
"PANDAS/PANS/Lyme/TickBorne-Diseases" and there are many people on there who would have good dr. recommendations for this in the US. Many, actually most probably, of the people on that Facebook group, have children with lyme and autism. Some are adults with these things themselves too. They deal with tics, movements, all of the above and more and are always sharing advice. It's a very supportive group too.

for what you're looking for, dr. recommendations, advice in general, people to talk to who are dealing with what you are, I would recommend it.
Posted 7/21/2015 5:19 AM (GMT 0)
thank you, I don't care for fb, guess I will join, I hope that is a closed group,

I use to work with autistic children years back and now I exhibit a lot of the same behaviors, or whatever the word is ( I use to be so intelligent, lyme sucks, life is an ironic trip sometimes)
Posted 7/21/2015 1:26 PM (GMT 0)
dorifish 1, yes it is a closed group. One thing I like about Facebook, is quite often I notice I get faster replies to questions I post, since people have notices for fb on their phones, etc. And, since I've been on that group for about 9 months now, about half way in, I notice that it's mostly the same people who post and answer, so it starts to feel like you know the people and a sense of community, to a degree at least.

Another place I thought of after sharing the fb group, is the latitudes website. It's another forum, just like here, all anonymous, and there's a PANS/PANDAS/Lyme sub group on the forum. Just google latitudes, pans, lyme, or something like that.

People there are great about sharing info too and very knowledgable. One nice thing too about the latitudes is that sometimes the discussion questions and answers can be a little longer if you want. Not that there's a word limit on Facebook but I notice often the Facebook posts are shorter, more succinct, and the latitudes more lengthy if they need to be.

The people here are wonderful too! But sometimes if you want specific info. like for autism and lyme, it's good to have a few places to try, and to go to places where that's what a majority of people are dealing with too.

I hope you find some answers and have hope there can be help!
Posted 7/21/2015 2:03 PM (GMT 0)
Our 13yo daughter recovered from diagnoses of Tourette's, Asperger's, ADHD and Sensory Processing Disorder by treating the bartonella and now babesia coinfections that were part of her "Lyme" infection.

Here is her timeline, I post on the ACN PANS/PANDAS/Lyme forum as rowingmom as well.

http://latitudes.org/forums/index.php?showforum=17

DD13 - Born 2001 with light/sound/touch sensitivity. Loss of speech/fine motor ability 2 weeks after 15 month MMR vaccination.

2004 - Dx ADHD, SPD (light, sound, touch), motor delay (with toe-walking), hypotonia, oral apraxia.

2008 - MMR booster and insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections.

2010 - Dx ADHD, Tourettes, Aspergers, motor delay, probable PANDAS.

Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, extreme fatigue, nightly fever.

June 2011 - Igenex PCR positive bartonella, Negative ELISA, Negative lyme (IND IgM kDa 41; IND IgG kDa 39, 34. kDa 41++). CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, methyl B12, methylfolate, P-5-P, herbal, homeopathic treatment with LLMD.

Jan 2013 - Bartonella IgG titers declined from 160 (Jun 2011) to 80. CD57 16.

April 2013 - Weaned from abx treatment at 80% improvement. Continued with Full Buhner bartonella herbal protocol, Terry Wahls/PerfectHealthDiet gf/cf/sf diet. Minimizing EMF exposure.

Sept 2013 - CD57 45.

Oct 2013 - All symptoms (PANS and pain/fatigue) 95% resolved. No flares with viral or other infections. Herxing remains with changes in herbal protocols.

Nov 2013 - Clinical babesia diagnosis. Improvement to 98% with addition of Buhner herbal protozoan treatment.

Dec 2013 - ANA titers negative. PANS symptoms resolved. Regular classroom requiring no accommodations. B+/A student.

Mar 2014 - Continued improvement in cognitive/executive function with increased dosages of cryptolepis/sida/alchornea (CSA) tincture.

Sept 2014 - Continued improvement with the addition of red root. Resolution of EMF sensitivities with low dose cilantro tincture and diatomaceous earth. 99%

She started with abx treatment but we transitioned to Stephen Buhner's herbal protocols for babesia and bartonella and she has significantly improved since then.

I would investigate finding a LLND (naturopath) to help with your treatment.
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